Hi all I’m 36, apparently RRMS but I think it’s SPMS now, but whatever, it’s semantics. I am meant to be in a wheelchair all the time but the council don’t have any available properties and haven’t had for the 18 months I’ve been looking. As a result I’m renting a bungalow which I have to get around using a walker. I tend to go bed > sofa > bathroom > kitchen (where I load up on drinks etc so I don’t have to do it again). I have left the house 3 times since March. I live alone. I have no pets. I moved to Devon from Bristol last year. I grew up in Devon, but I moved to Bristol to have a more exciting life. Last year I came out of a 6-year relationship and couldn’t afford to live on my own in Bristol so I came back to Devon. I stupidly thought I would be able to fall back into my old friendship group and my old life , and just as I was getting my confidence back with going out , covid hit. I can’t move back to Bristol because it represents a time in my life that was amazing and now I just don’t have the physical capability to live that life anymore. I feel like I’ve been forgotten by society and everyone else. I have no tribe I have no friends I have nothing. I’ve just been told that my eyesight has deteriorated to the point where I can’t drive. I just feel like a nobody. Does anyone else ever feel like this?
Hi Tingley-badger i for one have felt like you at times its such an awful feeling but try to remember this time will get better.The covid situation as hard as it is on everyone will get better in time hopefully.You have had some very big life changes and its going to make you feel out of sorts it would anyone.Try and keep in touch with people online as best as you can and look forward to being able to meet up with some when possible.Get in touch with your local MP to help you get rehoused.Our local MP was very good when my daughter who has a disabled child needed rehousing when she split with her partner.I feel for you not being able to drive i had to stop driving too and it really upset me a lot at the time as i was in my 30s too it just seems so unfair.Be kind to yourself and try remember you wont always feel like this.Nothing lasts forever good or bad.
x
Hello tingly badger
We’re still here. And many of us are friends because of this forum. Either just posting and supporting each other on here or extending that friendship to one on one, PMs or email. I have several proper friends now who I first ‘met’ on here and now have personal contact with. I’ve never met any of them, but to me they’re friends.
MS is an utter sod for wrecking our lives. It takes our sociability, our independence, ability to make and keep friends and somehow, often part of our personality. It’s as if it’s stolen some parts of what makes me, me.
If MS played a part in the ending of your relationship, there’s that too which can be levelled at MS. Even when it’s not a factor in ending a relationship, it plays a massive part in what happens next. As well of course, to how and if a new relationship can be formed!
I’m so sorry that you’re feeling so bloody lonely. Having moved and then to have Covid take away any chance of rekindling old friendships and new is a bugger. Living in a house that’s just unsuitable is yet more difficulty to face up to.
I don’t have answers for you. The only thing I can say is that we are still here and there’s always someone available to ‘talk’ to. if you are missing people to physically talk to, there’s always the Helpline.
Sue
Hello,
i’m 36 too. 10 years ago I was living in Italy, had lots of friends and life was great. I’m now back in Somerset and have had a miserable time for 5 or 6 years. My mobility isn’t great and I feel going anywhere is a risk and is a lot of effort. I still work part time (luckily it’s an office job). I got married just before my ms diagnosis and now have a 5 month old baby, which is great but I can’t be the Dad I want to be. Nobody close to me understands what I’m going through and I feel like I live in a different world to everyone else. Let’s get past this virus and start making positive changes. We can do it!
hi TB my MS nurse helped me move to my new bungalow.
You can make friends on line or find a project. so many facebook groups looking for people to help even advising. I meet a ton of people on facebook and never go a day without chatting to someone either from kenya, or USA or actually a neighbour in my sheltered on line lol.
I found my hobby hog watching. I have so many things to do. I support 2 cancer patients too. One of them i do her shopping online for her so its delivered as she is in self isolation. she find typing hard at the moment as has major surgery on her breast as they had to remover a 10 inch tumour and lymph nodes from under her arm. we organised a resident who lives in her sheltered (my old one) to go in with PPE and put food away for her.
where you live there are bound to be MSERS or people who need to chat.
I think you are in a highly depressed state at the moment and perhaps you need some sort of support from a GP. I know a rare bird at the moment. can you go outside in your wheelchair? mind you the weather isnt the best.
but is difficult times for long term sick at moment. I have not been anywhere since march. No chance i wont go near population right now only for deliveries and families. lol.
I dont mind my own company. running so many places when i worked and talk talk talk its kind of nice to just chill out now.
I talk to several people on this forum now OFF the forum who are on facebook.
I find its good to get away from MS sometimes. but you know we are always here for you hun you know that. xxxx CC P.S. ring your local adult social services and talk to them i think you need care assessment and support.
Hi Tingly, oh love I am sorry to hear how low you are feeling. This damned covid has put a lot of people into a solitary life.
You`ve had some good replies and I hope we have managed to make you feel a bit better.
Long winter nights and cold days ahead dont fill any of us with joy…but it is a temporary situation…after winter comes spring and we`ll all help each other get through.
Lots of love Boudsxx
Hi CC, you sure one ball of radiant sunshine for this forum.
Luvya baby!
Boudsx