I am at a loss, I have no idea what to do or whom to turn to.
Over the last two years I have been experiencing periods of time where it feels like my body is giving up on me (showing symptoms of MS) and this may last a few weeks and then go again (which is always a relief as my two favourite hobbies are walking and dancing).
Recently, I have been experiencing more symptoms and much more pain. So I went to see my GP hoping to get some help, he did not believe I was in pain, did some blood tests and sent me on my way. The symptoms were getting worse and affecting my vision, speech and memory, so I went back to the GP (at the time as well as pain and weakness I was seeing blobs, losing balance and I was so confused). I was accused of being on drugs and was asked if I wanted to kill myself. I went to hospital hoping to be helped there, I was shouted at for not having a referal from my GP and again I was asked if I was on drugs. So I went back to the docters and saw a different GP, only to have her rubbish me off too. None of the GP’s believe me and therefore are refusing to refer me for any further investigations.
I am not a healthcare professional, I don’t know what is wrong with me and I don’t know how to help myself when I am in pain (I am not keen on pain-killers). I don’t know whether the symptoms are MS or another condition with similar symptoms. I don’t want to feel like this, I don’t want MS or any other condition that will make me suffer like this for the rest of my life.
What am I meant to do now? Who do I turn to to find out what is wrong with me? And how can I manage the pain?
I know that maybe I am asking too much, but any small bit of advice, anything at all… is better than my nothing.