For the past 2 years I have been back and forth to the doctor with these symptoms I have and at first I was told it was Fibro and the latest is Superior Semicircular Canal Dehiscence Syndrome (which doesn’t explain all my symptoms. I finally sent a message to my GP and told her I need answers. I have an appt with her tomorrow and and MRI on the 19th.
Tingling and numbness in hands/arms/feet/legs at night while sleeping, during the day while sitting, walking, standing. Sometimes I get this feeling around my arms that feels like I have a rubberband on them…so I am always adjusting my sleeves but my sleeves are not even tight. The strength in my left hand is weaker then my right…which I know is normal but this is beyond normal. I always drop things from that hand. I can’t even sleep at night due to my hands being so stiff and painful. I wake up feeling my hands are swollen but they aren’t. Just stiff. The feeling in my left hand is different then in the right. This may be TMI but I also get a numbing feeling in my private area. Also, my face. Just typing all these makes the tips of my fingers hurt.
The leg and feet cramps are horrible.
Restless leg syndrome
Heavy legs. Some days are worse than others.
My hips and legs always hurt so badly. My neck is always stiff and in pain.
My balance is bad. I have stairs at home and have to count the steps and hold on because I have almost fell a few times. I have to be very careful because I trip on my own feet and lose my balance just getting up from the sofa or moving from stove to sink.
My fatigue gets worse. I am okay when I wake up but I need a nap by 12 and I have never been a napper. Some days my body just can’t and all I want to do is sleep and lay down but I have a 10 year old.
My memory is getting worse. I have constant brain fog. From the moment I wake up to the minute I go to sleep I am constantly in another dimension. I cannot remember having conversations or the answers I have given just minutes ago. I get dates mixed up and I have a hard time even understanding someone when they speak. I have to ask what? several times. My awesome multi-tasking abilities are getting crushed. I forget how to spell words and I have always prided myself on my great spelling ability. I can’t put together sentences and my speech gets slurred.
Sometimes my left hand will shake and I will just shrug it off to something being heavy. But reaching for something I see that shake and it’s scary.
I at times can’t swallow.
Now, I know some of these symptoms are from the SSCD but when I asked my doctor about the numbing and some other things he said those are not the symptoms of SSCD. The only thing on here common for SSCD symptom is the brain fog and balance.
I don’t know. Maybe I am just crazy. I hate talking to the doctors because it is always something new. I mentioned MS to my GP and she said she cannot rule out MS or rule it in until I see her. So, tomorrow I have the appt and we will see what happens.
Can anyone tell me what symptoms you had at first??