Found this which I think would b of great interest to those of us who have this terrible life limiting problem caused by MS.
Greetings from Pennsylvania. My name is Harry, and I am a retired speech-language pathologist. And I’ve been monitoring this board on and off for years. . . yes, I’ve been lurking. Now I have something that I think is important that we need to consider. I have an extensive background in audiology. And, importantly, I’ve been dealing with severe hyperacusis for about 20 years.
First, I thought it was recruitment. I attributed this to noise exposure related to my military service.
Prior to my retirement, I was preparing for a medical leave-of-absence from my work in the public schools directly related to hyperacusis. Then, all of a sudden, about three years ago, my hyperacusis improved about 80% in a matter of a few short weeks. The leave-of-absence was no longer necessary. Earplugs that were a necessity of daily life were gone. TV, crowds, even the noise of our ice maker became tolerable. Now I know why.
You see, I’ve been diagnosed with multiple sclerosis. The condition isn’t new, just the diagnosis.
My initial treatment IV medical treatment, designed to reduce the severe neurological attack I was experiencing, was quite effective. It didn’t make the MS go away of course, but it did reduce the neuro flare that was in progress.
At that time, in the course of a few weeks, my hyperacusis improved greatly to the point where life was bearable.
One of the first symptoms of MS often is optic neuritis, an inflammation of the optic nerve resulting in acute visual loss. There isn’t much of a stretch to think that the very nearby acoustic nerve could be similarly affected.
In any case, I was quite knowledgeable about hyperacusis, tinnitus, recruitment, and things auditory. Now, I was becoming knowledgeable about multiple sclerosis.
One thing strikes me plainly, and it’s this. Almost no one in the hyperacusis community is talking about multiple sclerosis. Almost no one in the multiple sclerosis community is talking about hyperacusis. I believe, very simply, that in some cases, there is a connection. Other significant auditory disorders are often a part of MS. That is known. I have had some input to current research on this connection. Some important research is currently under way—and due to my input now included hyperacusis.
There is so much to focus on in both MS and hyperacusis. I think it’s very possible that no one has yet made the connection, or asked the right questions, or put it to the test and the scrutiny of rigorous research investigation.
I wonder if there is anyone in this group who thinks that this is a productive direction to pursue. Or, if there are others with similar experiences.
Best wishes to you all,
Harry L. Borger