I’ve got a physio appointment at the hospital tomorrow, and am really dreading it. The underlying problem is that I never wanted a physio appointment in the first place, but a review of my Baclofen, which has stopped being effective, after a couple of years, so that I am in more-or-less constant pain.
I don’t think this is particularly a physio problem (if anything, I am fitter and more active now than I was at diagnosis), but I accepted it only because I wasn’t offered anything else, apart from “coffee and a chat” (even less likely to be helpful).
Now I’m concerned I’m going to get off on the wrong foot (no pun intended) straight away, with the physio, because my reluctance to be there, and that I have been steam-rollered into it, is going to be obvious.
I can’t pretend to be positive and optimistic about an appointment I didn’t really want in the first place, and which I don’t believe is going to be the answer. I think I should have had an appointment with the neuro, to assess my meds, and recommend changes. I don’t think he would OK an increase to the Baclofen, because he wasn’t happy with how much I was already on, but I need somebody to authorise an experiment with something else. My GP wouldn’t, and I’ve not been offered an opportunity to see the neuro (nest scheduled appt. end of July), so I was left with physio or nothing. I reluctantly accepted the physio.
Now feeling a bit regretful I’ve accepted something I’m not convinced will help, and think I should have pressed harder to see the neuro. I’m not having a relapse or anything - just stuff that used to work isn’t, and I’m virtually back in the situation before it was treated at all. I feel like I’m taking nothing (or that I got a batch of Baclofen that mysteriously had no Baclofen in it!)