How Many Meds Are You On?

Everyday living
21

Gosh i am such a lightweight. I have tried every drug known to MS lol…not one suits me. I ended up mostly a zombie or space cadet. My doctor at pain clinic said that they are in the main designed to keep us semi sedated lol…he was joking but did explain a lot dont suit many people.

I have to take a special tablet at night Levetiracetam thats for my TEA. For my MS:

Trimethoprim maintenance 1 night for constant UTI

Diazepam 2mg only at night if i need it to get back to sleep to help my spasms and cramps it works so i am a lightweight lol

Propanonol Hydrochloride for high blood pressure, which also helps anxiety and spams in MS.

Oh and one paracetamol if my nerve pain and spasm in my left foot gets too bad at night.

I wish i could take more to help me as i am in pain 247, i have tried but it seems my body just rejects it. So i do a lot of CBT to help me get through the day.

22

Just in case any new people read this and get depressed - I don’t take any (after 13 years and long may that continue)

Look at it this way people - you’ll never get lost - you make too much noise with all that rattling

Take care all

JBK

2 Likes
23

That’s a really good point. I think we should point out to newbies, that most of us are MSers of long standing (apart from Poll, cos she’s special and has HSP not MS), and lots of us are either PP or SP.

I’m coming up to 20 years, have been RR most of that time, but mostly unable to take any DMDs due to side effects and am described by my neurologist as being ‘in a progressive phase’ which is a slightly different way of saying SP I think.

Sue

24

I’ve got diarrhoea so everything I take goes straight through.

25

I would urge everyone with a shopping list of rattling dietary supplements, to source the document linked to in a recently locked thread, even if only to read the final paragraph upon page 5.

I am not promoting illegal activities and would wish for no one to to test their limits of comfort… but please just realise that life improvement is possible without cocktails of pharmaceuticals and that the USA and the UN have performed a 180 when it comes to the issue of medicinal cannabis.

Good luck.

1 Like
26

Gosh! Such ample lists. I almost feel inadequate! :slight_smile:

Tecfidera

Eltroxin for hypothyroidism

Calcium and vitd supplement. That’s it!

Oh, and do have a “herbal” smoke occasionally. It helps me sleep.

Tried LDN but unfortunately it did nothing for me.

27

Hi, I take 2 x Tecfidera & 2 tablets for my underactive thyroid plus vit d, calcium & magnesium. I’ve recently weened myself off omeprazole. :slight_smile:

28

Thanks for all your replies.

Don’t worry newbies. I was diagnosed in Feb 2005 and to be honest a lot of them years I was taking nothing. I have moved on to Secondary Progressive so take my tabs to help with the spasms and nerve pain. You may not need any medication ever. All depends how your MS progresses. There is medication that helps though.

Take care.

Shazzie xx

29

one for the newbies

don’t suffer bladder problems alone.

see a nurse at the bladder and bowel clinic.

don’t be embarrassed, they’ve heard it all before.

carole x