HOW LONG HAS EVERYONE HAD MS

Hi Nina,

I’m 56 now and was diagnosed in1999 although doctor said that I could have had it longer. It was a shock because I had always thought of myself as fit? I played Rugby and Hockey did Tae-kwon-do to black belt, cycling, swimming etc. etc. and jogging on the beach at 5 in the morning on St. Andrews beach where the only others were seals. It was beautiful in the sunshine. Now I use a wheelchair and a zimmer which I always thought were for very old people? I’ve also made love to 50 girls - I’m not boasting though because ‘splitting up was far from easy’ in fact it was so difficult that I don’t know if I have or not?

Marcus.

I would like to thank everyone for replying to my post,it has given me loads of information on ms and how it affects everyone in a different way.And for me to focus on the future and my children.

Thanks again to everyone it is much appreciated

nina x

hi nina

i was dx the week before my 50th birthday (2008) so i had my hair dyed purple because it used to upset me when i saw this invalid. the sight of my purple hair made me smile. at the time i was using a walking sick because i kept falling flat on my face and eventually i broke my big toe.

i had drop foot, as many msers have. the podiatrist made me insoles for my shoes which helped. but it was when i saw an osteopath who noted that one leg was longer than the other because my hips were out of alignment. he man handled me for 30 mins and i managed to walk home without the stick! now i wear those easytone trainers which make you learn to pick your feet up.

ms has affected my posture quite badly so i work really hard on correcting it - yoga classes, strength building exercise for my legs.

so look out for drop foot and posture problems and hopefully this will save you from nasty falls.

ms isnt the end of the world although sometimes it feels like it. i took up painting, something i always wanted to do but thought i was rubbish. i just needed a good teacher.

try to arrange something to look forward to.

take care

carole x

13 years. I was dx within a few months of first symptom, so they don’t think I had had MS for long before that. I need a stick for outside, and I can’t really write any more (can type though - evidently!) and am definitely some cognitive problems that my age can’t explain away. But if someone had been able to tell me 13 years ago that I would still be in reasonable nick now, I would have been very glad to hear it. No one could do that for me then, unfortunately, and no one can do it for you now. I know that’s hard. The important thing is not to waste too much sweet life worrying abut things that might never happen.

Alison

x

Hi, Nina.

I’ve read pretty much all of the replies - TOO BLO*DY LONG!

Marcus. x.

Hi, I was dx 6yrs ago but looking back I had probably had it about 5 years previously . I am still working just about, these last 3 months have been the worst but I am still mobile and just use a stick for support as I have fallen a couple of times. Karen x

They would have been shorter if you had left out your irrelevant sexual history. Why do we need to know that???

I was diagnosed about a year ago at 31yrs, was devasted but it’s become more normal now. I have sensory pain so I can’t walk as far, but I have two small children so I’ve not had time to stop or rest, which in a way is bad but overall I think its good.

Hello Nina,

I was diagnosed with RRMS, in 2010, after stroke like symptoms in May that year. I continue to work full-time and have good and not so good days. I am very fortunate to be offered medication early on, and have been taking Rebeif since April 2011.

Regards

Gareth

LMAO!!!

Hi Nina. I’ve just celebrated 50 years with MS. Started off with RR, not dx for 25 years -written off as hypochondriac (nobody could have all those different symptoms etc), had at least 3 relapses every year (hospitalised with huge IV doses of steroids each time) then suddenly went into SP stage 10 years ago. Can still stand and walk a short distance, but have had NO MAJOR RELAPSES for ten years. Just to show you that it doesn’t always get worse! All the best, Belinda.

So Marcus, what was it that attracted your Catholic Opthalmologist wife to a 50 girl shagging lothario like yourself !!!

(and do tell, as you are so fond of divulging your sexual prowess, was this before or after marriage?)

Yeah! Funny thing is Marcus, sleeping around - it’s nothing to be proud of. There is an MS symptom that affects that part of the brain that affects awareness and socially acceptable behaviour.

Your comment that the replies are too long is just rude and inconsiderate. This thread is to help newbies.

As for mentioning my sexual history - DO YOU KNOW EXACTLY WHAT CAUSES MS??? - THOUGHT NOT!!!

Marcus. x.

Lost me on this one Marcus… Can you explain what your sexual history has to do with no one knowing what causes MS?

Are you implying it was sexually transmitted in your case?

Belinda

No one knows what causes MS but obviously you’re a big dick (or think you are). Don’t you realise your making yourself look like a plonker; no comment on what fanny adams is looking like.

George

It’s not the ‘replies’ I was talking about …It was my response to “HOW LONG HAS EVERYONE HAD MS” - and it is “too long”!!! I’m not exactly ‘proud’ - it just happened! - It was with ‘girls’ and frequently they withdrew from the relationship - not my fault.

My personal history was divulged ‘before’ marriage and it is not uncommon amongst males (or females) - you are being ‘prudish’! My mother was a catholic and she and my father got ‘rank’ in the second World War - before you were born!

Marcus.

Oh! and my wife comes from Northern Ireland where ‘KILLING’ was the pastime - rather than making love.

Marcus.

‘Are you implying it was sexually transmitted in your case?’

Belinda

No, but does anybody know? And does anybody have a cure yet? …or in my life time?

Marcus.

Interesting words ‘George’ - You obviously ‘didn’t’ go to University - like me!

Marcus.