An apology seems to be in order for a misunderstanding Marcus. It seems that when you said
"Hi, Nina.
I’ve read pretty much all of the replies - TOO BLO*DY LONG!
Marcus. x."
some people misinterpreted it as meaning some of the replies were too long, not that people had had MS for too bl**dy long. Couldn’t agree with you more that having MS even for one day is too long.
Mind you, I still don’t see the relevance of your sexual history …
You could have ‘explained’ the context of your reply?
People here aren’t mindreaders. We can’t guess that you were referring to MS and that it shouldn’t exist. It just came across as ‘you people here are self-obsessed windbags’.
As for your sexual history, I can’t think of anyone who’d want or need to know who you’ve had sex with, but maybe you aren’t making a literal point?
By your explanation, you seem to be blaming MS for the breakdown of various relationships. Which is understandable - BUT, it came across as a boast of sexual conquests. It’s not so cool to be Don Giovanni, with his little book of the women he’s slept with. I don’t think it caused your MS though, although you seem to have a different opinion.
Are these the points you were trying to express? If so, then I’m sorry. It’s impossible to read between the lines on the internet.
Sorry the thread got side tracked. It does that here sometimes. Bit like having a conversation in a noisy pub
I have had MS for 9 years but in hind sight I probably had symptoms mildly for a few years before that.
I was unable to take any DMDs due to severe allergies and I have gone SPMS in the last year. I use a scooter to get a round outside and furniture walk inside. I have a lot of pain and fatigue and am able to do very little before having to stop and rest.
My worst symptoms are spasticity, pain, fatigue, memory problems, bladder issues and ahh, did I mention pain? That is a whole category in itself: Trigeminal Neuralgia, Central Pain Syndrome, chronic migraine and the usual zapping and stiffness and general discomfort.
I have home help 5 days a week. I still work part time but I am really lucky because I work from home. If I had to go to an office for work I wouldn’t be able to do it. As it is I can lie in bed and the clients are none the wiser
The thing is though that everyone seems to do MS differently. I know a woman in her late 70’s who also never had DMDs (they weren’t around back then) and she is as fit as a fiddle and does more in a day than I can do in a week. She only uses a walking stick and really only as an insurance aid for balance.
There is no way of knowing how your own story will unfold until it does but one thing I have found is that we can usually cope with a great deal more than we thought we could.
Every time I log onto the site you are there mentioning your marathon shag-in, doesn’t matter of the title of the post or the initial subject, your 50 + girlfriends are obsessively brought out to ‘show and tell’ again.
I’m not prudish but I have no idea what impact bonking 50 females could possibly have on your MS.
You’re right, we don’t know what caused it but that was certainly not MY reason for developing it.
I was DX 6.5yrs ago, but when I look back I had my first episode 22yrs before, and apart from the odd thing happening every now and again, which I have to say I didn’t know was MS I was fine, when I was DX I was given a label, for wont of a better word, then 18mths after I was given SPMS, I’m still mobile walk with a stick, and use either a chair or my new scooter for longer days out, take care, Jean x