Gilliano75
Well done !
25 weeks to 4 weeks, that’s brilliant.
A good bit of advice for others.
There’s nothing to lose by calling, and everything to gain.
Hope your appointment goes well.
Ben
The receptionist advised me to call. As there is always cancelations she advised to. Call on the day of your chosen consultant surgery days, shy kids and all that
The receptionist advised me to call. As there is always cancelations she advised to. Call on the day of your chosen consultant surgery days, shy kids and all that
I’ve been waiting 5 months now,starting to feel resigned,don’t understand how an urgent referral can take so long,ill ask for cancellations too Gilliano 75,thanx for the suggestion
Glad to help, also if any one is Waiting for an mri scan please call the hospital to see about mri cancelations as I have been offered them with in a few days of me calling rather than waiting the normal months
Hi, Im new and this is my first post.
I went to the doctors with numbness in my arm, she thought I had a trapped nerve in my neck and sent me for an MRI scan which I had before Xmas. Last Thursday I got a call from the docs saying she wanted to see me with the results, my appointment was Monday, there is a suspect area on my cervical spine, MS has been mentioned which came as a complete shock. She sent an urgent referal to see a Neurologist which came through yesterday, again Im shocked at how quick its come and my appointment is Sunday morning, so less than a week! I realise I am very fortunate to get an appointment so quickly but I am so so scared.
I did not ask to see a neurologist dr, I went to the opticians told them I was seeing double this was February 2018. A doctor in my surgery saw me in early May, a week or two later I saw the eye dr, he gave me a plastic prism to stop the double vision. He then get me back togo in July it was in December that I saw the eye doctor again. This time I asked them if I could have a prescription for my glasses which they did and I have got them today he said that last time he wanted for me to have a MRI a couple of weeks later I had it done. I then got an appointment to see the neurologist in August. I didn’t know why or what he did. He told me about three times about Ms but that he wanted me to have a blood test he said was I busy now and that I could have it done now the same day lol. He then said that would I be open for a lumber punch? I said yes and wrote off then and there to get it booked. I went sailing through August then in September I got the letter selling me I had fourth nerve palsy in the right eye with white matter changes consistent with demyelinating disease, but he wanted a blood test and lp and a new MRI in 2019 he said it would be in February
Your right first thing I did l googled it, not fun at all. I did phone my doctor he said that the neurologist was still looking at what it may be, no help there then. Then in December I got an appointment to see the neurologist in middle April, so I do know that it will be done before then. So now I am just waiting. I am glad that I had a good optician and eye doctor so that I got it done fairly quicky. I hope that this was helpful. Kay
Hello
Wow, that is a speedy service. But no wonder your head is spinning with the speed of all this.
It’s odd that some people seem to end up waiting forever for appointments and tests and spend months worried sick about the possibility of MS, but yours has been the complete opposite. Neither is ideal. You’ve been walloped with tests, appointments and results coming super fast.
I hope that your appointment with the neurologist is helpful and that you come out of it with information, possibly more tests and a positive feeling. If you can arrange it, take someone to the appointment with you so they can help you to remember what is said. It’s very common to come out of an appointment, during which you understood what was being said, not remembering a word of it, and having no clue what happens next. So another person is helpful. If you can’t (or even if you can) take someone, keep asking questions. When you don’t understand something that’s said, ask for the doctor to explain. Try to get a clear plan of what’s to happen next (tests, appointments etc). And try not to worry too much. The more relaxed you are, the more you will get from the appointment.
Best of luck. Come back and tell us what happens.
Sue
Thanks for taking the time to reply Sue,
I am a born worrier, mainly over daft things but I usually cope well with things that do warrant worry lol but all this feels like Ive been thrown into a deep dark pit and I cant get out… and thats before any definate diagnosis. I have done what we should never do, Ive consulted Dr Google! and now I seem to be having every symptom listed, all in my head I hope. My husband is coming with me and Ive written down a list of things that have happened over the years. I could do with making a list of questions too!
I injured my arm/shoulder a few months ago and it hasnt been right since, I just presumed the numbness was down to that but the MRI has shown an area of my spinal column is inflamed, she mentioned the coating etc, the rest was a bit of a blur. Its crazy as if I hadnt gone to the doctors Id be none the wiser as the numbness has gone now.
Thanks so much for your support
Louise
My story quite similar, in Aug 2017 I noticed my eye sight was worse and I had floaters and it hurt when I moved my eyes, just thought needed new glasses. Went to optician and was told my optic nerve was swollen I was no wiser what that meant at time. They gave me a note to take to GP to get referred to opthamology at hospital. First one I saw mentioned may be optic neuritis, so I googled and MS popped up. Saw two more ophalmologists, and MRI head then had to wait about 4-5 weeks to see Neurologist. Who mentioned if I had second episode it would be classed as MS, but for now was clinically isolated syndrome. Went for reassessment of my back (have chronic back pain) last July to GP who referred me to musculoskeletal service, pain was different plus I had reduced sensation in my right leg, he ordered a full spine MRI which I had within few weeks, then was a waiting game to see neurologist, had another request come through beg Oct by another neurologist for repeat MRI head. Then eventually saw my neurologist for results end Nov to be told I have MS.
Just going for strength health and stress
Would like to see the neurologist as soon asap but that’s not going to be