That is one of the worst things about MS. The fact is that we none of us know what’s round the corner. And you can say ‘but that’s part of being human’, or ‘you could have a heart attack and die tomorrow’, to your heart’s content, but the fact is that having MS makes our lives just that bit more unpredictable.
And the most predictable thing about MS is it’s unpredictability.
So, the question of how to cope with that is kind of unanswerable. Eventually you end up just living day by day. Don’t try to worry about tomorrow, because everything might change by then.
Perhaps that is why quite a few of us don’t mind being considered a little odd. Or ‘different’. Because we have to not worry about the future, ultimately it frees you up to be who you are and not worry about what anyone else thinks. Since it’s irrelevant to our future, what does it matter whether Mrs Next Door thinks I’m strange? And if anyone can’t handle who I am, that’s their loss not mine.
I don’t know if that helps or not, whatever!!