About six months ago my mobility was very poor and my GP prescribed a two week course of omeprazole 20 mg steroids. They took effect almost immediately and were like a cure ! Fatigue, spasticity, mobility all improved dramatically. When I finished the course I deteriorated rapidly and had a bad couple of days before I recovered to almost steroid ‘cure’ level. During the past couple of months I’ve gone downhill again and my mobility has suffered.
I’m considered to be primary progressive, although that’s not a diagnoses but my assumption. I’m 59 and was initially diagnosed 8 years ago. I haven’t seen a neurologist for about 5 years.
Is there anything I can do or take to maintain the steroid benefits ?