How can I fight MS when I'm fighting the system??

Thanks Michelle. I hope you get things sorted out too! xx

By the way yes you can get esa with Dla but bare in mind atos are still doing the assessments for esa too. There contract doesn’t end now until August 2015 it got extended.

[quote=Stewart Cumiskey]

As Zetland asked what the MS Society is doing, er this:

http://www.mssociety.org.uk/get-involved/campaigns/key-campaigns/uk-campaigns/defending-disability-benefits

And er, this:

http://www.mssociety.org.uk/get-involved/campaigns/campaigns-blog/2014/06/pip-fiasco-unacceptable-take-action

And this:

http://www.mssociety.org.uk/ms-news/2014/07/government-court-over-pip-changes

And this:

http://www.mssociety.org.uk/ms-news/2014/03/pip-roll-out-problems-beginning-end

And our head of Policy & Campaigns wrote this:

And if you want to help us fight, and want to stay informed, please join our Campaigns Community:

http://e-activist.com/ea-action/action?ea.client.id=1692&ea.campaign.id=18864

Also, help us to campaign, shout louder & deliver the hard stats to slap 'em with. DO the Big Benefits Survey 2014:

https://www.surveymonkey.com/s/DBCsurvey2014

Stewart

Stewart, plenty of information but when an individual with M.S. is facing problems the Society dos not support that person. Yes the MSSociey will give information, assure pwms that they, the MSS are addressing the issue but as for fighting our corner - no chance.

Give it a go, - phone the MSS anonymously telling them you are being discriminated against at work or your benfit has been stopped or you have been wrongly medically assessed. You’ll get plenty of information about what the Society’s attitude to these problems is, plenty of info re. what they propose to do. As for picking up the phone on your behalf - it wont happen.

Should you be expecting the mss to actually pick up the phone and take over for someone they don’t really know, everyone can sound like a needy worthwhile case but there are always more than one side to a story, not wishing to sound harsh, but can’t knock all the info from mss, and I’m sure that everyone trying to get extra money to cover all the bills and eat, need it, good luck, to me, and all of you.

Hi Kaz,

I feel for you I really do, I was turned down for PIP earlier in the year, I was in such a mess at the time that I didn’t challenge it, I have recently re-applied under the advice of one of my MS team so the fun starts again. Recently had a letter saying got to have medical assessment so thats something to look forward to.

We didn’t ask for this condition and/or any disability as a result. You can’t argue with brain/spine scans, endless specialist visits, prescription lists as long as your arm, several experts involved in your treatment/care/rehab YET you aren’t entitled to a benefit designed to make your life a little bit easier RIDICULOUS!

Pass the brandy.

Keep fighting Kaz I hope it’s sorted soon

Take care

BeckyX

Thanks Becky. Good luck to you too! xx

I feel for those being turned down when I applied I had no medical evidence at all due to a terrible gp and lucky I had a nice atos nurse on my side who suggested I change gps so I did. She suggested I be awarded it and I’m going to be like this for at least another 9 months but dwp still turned me down they then contacted the atos nurse and after a month of waiting for reconsideration I was awarded both standard but my mobility is worse part. Anyways going through dx at the moment but always challenge there decision always they want you not to challenge it there are people who can help cab and fightback4justice. Good luck.

Thank you Alysea xx

shortly after dx I became very depressed and having recently moved from my family I had no one to support me - (having big problems with my employer.)

All the excellent info available from the MSS re my rights was of no use neither was the invitation to come to a future local MSS meeting.

It’s regretable that the MSS does not recognise that some pwms may need individual support at times.

Yes zetland. Nothing personal, and in an ideal world we would not even be in this predicament, unfortunately life’s a bitch, and it won’t get better, I just wish you get somthing to make you feel a bit happier, this (mess) is bad enough. Genuinely good luck mate.