Hmmmm

Well saw my gp this morning who had received a letter from the neurologist which I apparently should have had a copy of but never got. So diagnosis on the letter says ? Demyelinating disease or ? Polyneuropathy he never mentioned either of these in the appointment in fact just told me not to worry lol easy for him to say. GP was great saying she would contact neurologist to try and hurry up my next appointment which is when I will get results of MRI and nerve testing but which is not due until march ( haven’t actually got the appointment yet) She is also going to refer me to the pain clinic as the gabapentin isn’t quite enough I am limited to what I can take thanks to an inherited kidney condition. She feels that as my symptoms have changed with me now having tingling in my face that being seen sooner would be better. I also noticed in the letter that he is only a locum which doesn’t instil me with faith with any continuity of care. My hubby is away at the moment so feeling like I need to off load and share somewhere, thank goodness for forums :slight_smile:

glad you hot the letter from your neuro via your gp…who sounds very proactive it’s frustrating to wait fir neuro appt post results…perhaps neuro is wait g for all the results to come back. I have just had head and eye MRI and results and letter on way to gp…don’t have an appt to see eye neuro till April…but have two more tests yet to have done… it seems generally if an MRI isn’t clinically urgent re results …one has to wait…fair enough… try and stay positive…snippets of info that are not put into context for you can be frustrating but it seems from what you say that all will become clearer soon… let us know how you get on :slight_smile: