I srarted getting itchy hives (urticaria) when I was walking with the ramblers, about the same time as I started getting weakness in my right leg ,(which continued to get worse and after three years of tests was diagnosed as M.S). Of course I don’t go rambling any more, but walk less than a mile with a stick. I have continued to get the hives for the last six years though and wondered if they are in any way connected to the M.S. Has anyone else had the same experience? They seem to be triggered by a change in temperature, but it doesn’t have to be much and I find myself tearing at them they are so itchy. They can appear virtually anywhere -arms, thighs, shins and when they completely dissappear after a couple of hours all that can be seen is some light bruising where I have scratched!They have got worse over that six years: I seem to get them every day now. I have ‘relapsing progressive’ M.S. I asked the neuro about this but she said she didn’t know.
hi lynchlaw,sorry i hadnt replied earlier but not been on forum for a while. i too have urticaria and have had it for easily 7 years, also around the time i got my 1st symptom of numb leg. i always thought mine was when i got hot especially after a glass of wine or two and got a bit warm.but over the years have noted it when i eat tomato, in any form - baked beans,tomato soup and tomato sauce.it is nowhere near as bad as it was and i used to take anti-histamine when it was particularly bad. i asked my neuro about it and he said it was not unusual to have that and any other auto immune problem with ms.
I’ve had hives for 3 years and doc says it’s inflammation from MS. I can’t figure out how to get rid of them daily with no explanation. Everything seems to trigger.
i know this is a very old post and the poster probably wont still be on the forum but i have this last 6 months started with bad hives that come and go I wonder if its the MS causing it.Its driving me insane especially on my scalp and neck.They come for about 30 minutes then go off only to come back in next few hours or days.I take over the counter anti histamine that does help a bit.Does anyone else get it?
I have started a couple of threads over the years I’ve been a member asking much the same as these questions as these but nobody ever replied.
I occasionally suffer with Urticaria and slightly rarer Angioedema’s on my lips and eyes. I take Citirizine tablets quite regularly to stop the grief from the Urticaria and when I have an Angio I take prescribed (by my GP) Fexofenadine 180mg.
The MSSociety website and the other MS site both say it can be part of MS but my NeuroPhysio said it isn’t and my Consultant (on the super rare occassions I get to see him) is just very dismissive of it and won’t say whether it is or isn’t MS related.
It all started at around the same time my first Optic Nueritis occurred and this was the first recorded symptom of my MS and so it all ties in for me. I now just treat it as a relapse albeit a very minor one.
Just joined and saw this post. I have just been diagnosed with mild ms and started with hives and swelling in May. I ended up in A&E when my face swelled up and was referred to a specialist. It was super scary! I’m now on 2 lots of telfast (antihistamine) 180 mg per day to control which I can move up to 4 per day if it flares up plus over the counter as well. It’s likely to take a couple of years to subside if at all. My MS consultant confirmed it’s linked to autoimmune stress, I’m also type 1 diabetic, it’s nothing to do with allergies. I have found since then when I’m stressed I get get flare ups. It’s nothing serious but just awful when it happens. I cannot stop taking the telfast or reduce it until I’ve had 2 months without a flare up, that’s not happened so far. Xmas eve my face swelled up again, joy!
I feel your pain and discomfort Jazzmo. I certainly don’t suffer with it anywhere near as much as I used to but it still occasionally flares up. I’ve been suffering this for over 10 years now.