4 weeks ago I woke up and had hundreds of tiny dots in my vision, like when you rub your eyes. I’ve had them before but they always went away after a while, this time they didn’t go away. It gradually got worse over the next 3 weeks including double vision in my right eye, flashing lights and a patch in my right eye where I couldn’t see anything, After about a week I started getting headaches, probably from trying to see through my dodgy eyes.
The eye clinic said there was nothing wrong with my eyes and sent me to neurology. Neurology said it could be a migraine and gave me some migraine tablets and told me to come back if they didn’t help. They didn’t work so I went back to my gp for a referal and spent 2 weeks trying 4 different migrane tablets until I started getting pins and needle type sensations in my legs and head.
The gp sent me for an mri (I managed to get in the next day due to a cancellation) a week later I got a phone call from a consultant at the hospital asking me to come in for my results. She told me my mri showed signs of ms so they were going to do a lumbar puncture and start me on a steroid drip. after about 8 hours in and out of the waiting room the dr told me my spinal fluid had a bug in it and I had to stay the night for antibiotics.
I spent 4 days in the hospital being told that I had meningitis then that it wasn’t meningitis, then they hadn’t found an infection they found a high white blood cell count, I was on antibiotics then anti viral meds eventually they let me go home with anti viral tablets telling me it was meningitis.I got a letter on Tuesday with an appointment Today with the neurologist.
Today my neurologist told me I most likely have ms. He showed me my mri and pointed out the little white dots that shouldn’t be there, he said that the evidence of infection was most likely a cold that was about to hit. He says he has to wait for my lumbar puncture results which will probably be another 4 weeks. It is in its very early stages and they have to wait for my lumbar puncture results before they start me on steroids.
I just wanted to say hello and share my story.