Hi, I’m newly diagnosed with MS. They didn’t tell me what type, what my options are or what I need to do to keep myself healthy except for exercise. I’m hoping all will be revealed when I see my assigned MS nurse for the first time in a few weeks, with a nerve test a couple of days before.
I have weakness in my arms and legs and sometimes find it hard to walk. The problem is, I have a long history of depression and I fear it’s hitting me like a tonne of bricks lately. I can’t tell whether the fatigue is MS or depression.
Does anybody else feel this way? Sorry for such a heavy first topic lol
Hi there,
Welcome. I think the majority of newly diagnosed are Relapse-Remitting Multiple Sclerosis, however there are some who are directly dx Primary Progressive MS.
I’m RRMS for the past 24 years, so after a number of years it’s likely the disease will progress to Secondary Progressive MS.
In the past couple years my walking has been affected quite a bit, I now rely on the use of two nordic poles or my rollator-walker, to get around. It’s good to take healthy nutrition, exercise/keep active and try to always think positive.
Best regards,
JP
Hi CustardHeart ( interesting identity/name). Can I ask who informed you about the diagnosis and did they not say anything about treatments, have you seen the neurologist?
In terms of your meeting (s) with the MS Nurse I think it’s helpful if you take with you a list of all your symptoms, when they started etc, all your questions and worries no matter how small or trivial they might seem to you.
There is a lot of advice out there for people with MS. Advice about exercise, diet, meditation/mindfulness . I make use of a website managed by an Australian Professor of Medicine who has MS and called ‘Overcoming MS’. I think it’s worth looking at for lots for lots of , tips, suggestions and discussion. Meditation - mindfulness can be of great help in dealing with anxiety and depression!
Depression ! It sort of goes with the territory of MS and I fully understand and sympathise with you. At times when I’m feeling down and/ or anxious I go for a few counselling sessions which can be very beneficial. Like a fair few people on this forum I’ve been taking an antidepressant (citalopram) for years.
Hope this reply is of some help.
(P.S. I’ve been diagnosed for some 18 years and although my walking is limited I can still walk . Make use of a scooter for anything over 10 mins or so)