I had my follow up exam from my first diagnosis 6 months ago yesterday, and my main priority was going to be to talk to the Dr about crutches as the cane and splint only really works for short distances - not even the top of my road. And she was talking about applying and having to go to EXETER for an assessment. She was offering me a mobility scooter but I have to have an assessment for crutches? Does not compute.
Also I finally got my PIP forms through today and was quite shocked that it’s 40 pages long. But it’s all good here apart from that.
Rant over, I hope you’re all doing well?
Dave
Hi Dave, hope the PIP forms aren’t too bad for you but get some help filling them in.
I use a stick daily and do have crutches… I try to save them forwhen I’m really bad, I’m pretty confident that if I used them for a whole week, I’d always have to use them. My physio at the hospital just gave them to me, I didn’t need any assessment so I’m not surprised it doesn’t compute!
My latest is that I have appointment for orthotics and will hopefully have a FES appointment too very soon. I’m a bit anxious about that but if it helps, I’ll try - that was via neuro rehabilitation,
Good luck
Sonia x
Hi Dave i used crutches and did need an assessment was just given them…i have an assessment for wheelchair a week on monday…im not suprised your baffled… Mac
Hi Dave and everyone else. I was diagnosed last June with SPMS, but have deteriorated a lot since then, started walking with a stick but now only walk a very short distance(about 10 yards) with my new walking frame, I have to use my wheelchair out side, with my hubby pushing. They have sent round a really nice guy to see if there is any thing they can give that might help around my home, to date have a perching stool for the kitchen, which is great, raised toilet seat and rail on the wall to help me get off the loo, yesterday a shower stool arrived,waiting to hear about an indoor powered wheelchair, and a electric chair to help me get up.My team in Colchester are great, don’t know what I would do with out them, so it is a post code lottery as to the help you get, with is so wrong. Love to you all Deborah
Hi Dave,
Got DX back in 2011 but last year in febuary i decided to apply for DLA as was finding basic things around the House impossible to do.
I rang them up in june to see what was happening, they told me that they had no record of my application, so i had to re-apply .
So thats what i had to do but this time its under PIP haha but i sent it recorded delivery…
To date am still awaiting a decision…HUMPH…Nine…Months
Cant work the system out i know Two other women DX last year who have had Full benifits within Two Months…
So good Luck mate hope it goes better for you
Craig
Hi Craig and everyone else, I’m having a bad day today, went to the Jobcentreplus yesterday for the first time, had an hour with a nice guy who went though a few questions, and all he said was I have to wait to be contacted for a medical to see if I am fit for work. Craig I had an interview with ATOS in September last year after completing my DWP form (36 pages) back in June when diagnosed, but still had to wait for an answer as to wether I was entitled to PIP, fortunely I got the approval in February 2014. So a long wait but got there in the end, now have to wait for the next chapter in my MS and a medical with guss who ATOS. All the best Deborah