Hello everyone
I am James I live near Leeds I have had MS for just over 2 years.
Its early on in my new journey but I need to speak to other people who understand.
So just wanted to say hello as I hope to become more active on here as it could help me out 
All the best
James
hi james
i was diagnosed october 2008 which was the week before my 50th birthday.
my first few years were great, had a brilliant social life and even went to festival number six twice!
(that is in port meirion were the prisoner was filmed)
now my higher rate DLA has been sabotaged and can’t afford the blinking pub let alone festivals.
but well hey life goes on and it is mostly good.
carole x
Hi James, and welcome.
I’m Ben, I’m getting on a bit, and I’ve had MS for bl@@dy years.
I may not go to festivals like Carole does, but I still get around and about.
It ain’t all bad.
Ben
Welcome to the forum James … I’m just under two years dx so yes early days … it is full of amazing people on here who help an awful lot !!
Hi James. Welcome to the house of fun. Hmmm
Diagnosed initially RRMS out of the blue two years ago without any real symptoms, but three sudden episodes of partial paralysis in as many day took me via ambulance to A&E and admission to a ward on a Saturday morning. Monday I was diagnosed with MS. The steady deterioration of my mobility has changed that to PPMS now. Aged 57 in real time but 17 or so in my head, I’m forthright and call a spade a spade! Come and join in. Great info on here, a lot of chat and sometimes a lot of insanity!!
Hi James
Im fairly new here as well. There is a lot of chat here that is way out of my league as my symptoms are nothing compared to a lot of people here although I have been diagnosed with PPMS for a year now. It has been a good source for information and answers to my questions. I still cant get my head around MS and what its all about but I`m learning.
The bottom line is if ever you need a chat there is always someone here listening.
Cheers.
waves hello James
I’m fairly new here too (joined about a month ago) - diagnosed August last year and still learning to live with MS, I’ve found this forum a huge help, its the one place you can go where everyone actually understands what you’re on about!
~Soo /(",)\
Thanks everyone
Sometimes I think I am dealing with the fact I have MS not bad at all. But other days I just crumble with the weight of this stupid illness on my shoulders, I do try to be positive about things but sometimes it’s sooo hard.
I spend so much time looking at new treatments etc on the internet not sure this is a good or bad thing, so I am reasonably clued up about what’s going on with my body and Ms.
I get the feeling most of my friends don’t really understand I get that because why would they, some do but they have lives to live themselves don’t need all my shit.
i have a brilliant MS nurse she is amazing has helped me so much.
I guess what I am trying to do is really really accept my new life now but as you all will understand it’s easier said than done.
take care
James
Morning James,
delighted to hear you have a good MS nurse. There is a site with useful videos to help explain stuff to friends.
Good luck
Mick
hi james
i can relate to what you said about “accepting your new life”.
my physiotherapist told me that i needed to learn what ‘my new body’ could and could not do.
almost 9 years later i’m still learning.
the biggest thing i learned was to stand still for a minute before trying to walk.
in the early days i still did that leap to your feet and dash - which ended up with me falling flat on my face!
carole x
Morning James, and welcome to the club that nobody really wants to be a member of! Yeah, things can vary from day to day… some days better than others. I have the Relapsing-Remitting variety, diagnosed in 2013 and am still coming to terms with it; it’s so changeable from day to day and you never know what you’re going to wake up to! I gave up looking on the internet for info about this… just made me more depressed and scared. All I know is that I am still here, and I’m reasonably sure I will be tomorrow too…
Hello James, glad you’ve found your way here, it’s an invaluable source of information, experience and advice from some extremely knowledgeable and friendly people. I still feel new here, dx July 2015 RRMS but I do feel I’ve progressed from the ‘Newly dx’ board to the Everyday living board. I’m 59 now, so it looks like a lot of us were a similar age on dx.
Keep well,
Angela
Hi James and welcome.
I`m an honorary member of this gang, cos I used to have PPMS, then I used to have HSP…not anymore!
Doubt I`ll ever find out why I cant walk.
Entering my 20th year of disability now!
Have you been to the Leeds MS Therapy centre?
pollsx
Pollsx I kind of live in between Leeds and Bradford so I actually go to Bradford for all things MS. I hear it’s very good but I have no problem with Bradford at all everyone has been great. Takes along time to get to see anyone but thinks it’s like that everywhere 
James
Oh that`s good James.
pollsx
Welcome James.
Not sure what you mean by ‘accepting your new life?’
m.s. has a massive impact on us but we mustn’t let the m.s. change everything or become the thing that’s always foremost in our minds.
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^^THIS!
Hi James
I’m a 20 year veteran. Pretty disabled now, but for people early in diagnosis that’s not the inevitable future someone with RRMS ends up with due to availability of DMDs. It’s not even the inevitable result of progressive MS.
But I do understand what you mean about your ‘new life’. The fact that you as a person haven’t changed doesn’t mean that the reality of your life remains the same.
The MSS forums are a massive source of support for many people. And for some of us, they are where we find commonality with other people with MS (plus Poll aka Boudica). ‘Talking’ to people who may experience some aspects of life in the same ways you do can be invaluable. People without MS, or some other potentially degenerative illness, can’t really understand the actuality of our lives.
So welcome to the club that we don’t want to be in, but are very grateful that it exists nonetheless.
Sue
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