Diagnosed initially RRMS out of the blue two years ago without any real symptoms, but three sudden episodes of partial paralysis in as many day took me via ambulance to A&E and admission to a ward on a Saturday morning. Monday I was diagnosed with MS. The steady deterioration of my mobility has changed that to PPMS now. Aged 57 in real time but 17 or so in my head, Iām forthright and call a spade a spade! Come and join in. Great info on here, a lot of chat and sometimes a lot of insanity!!
Im fairly new here as well. There is a lot of chat here that is way out of my league as my symptoms are nothing compared to a lot of people here although I have been diagnosed with PPMS for a year now. It has been a good source for information and answers to my questions. I still cant get my head around MS and what its all about but I`m learning.
The bottom line is if ever you need a chat there is always someone here listening.
Iām fairly new here too (joined about a month ago) - diagnosed August last year and still learning to live with MS, Iāve found this forum a huge help, its the one place you can go where everyone actually understands what youāre on about!
Sometimes I think I am dealing with the fact I have MS not bad at all. But other days I just crumble with the weight of this stupid illness on my shoulders, I do try to be positive about things but sometimes itās sooo hard.
I spend so much time looking at new treatments etc on the internet not sure this is a good or bad thing, so I am reasonably clued up about whatās going on with my body and Ms.
I get the feeling most of my friends donāt really understand I get that because why would they, some do but they have lives to live themselves donāt need all my shit.
i have a brilliant MS nurse she is amazing has helped me so much.
I guess what I am trying to do is really really accept my new life now but as you all will understand itās easier said than done.
Morning James, and welcome to the club that nobody really wants to be a member of! Yeah, things can vary from day to day⦠some days better than others. I have the Relapsing-Remitting variety, diagnosed in 2013 and am still coming to terms with it; itās so changeable from day to day and you never know what youāre going to wake up to! I gave up looking on the internet for info about this⦠just made me more depressed and scared. All I know is that I am still here, and Iām reasonably sure I will be tomorrow tooā¦
Hello James, glad youāve found your way here, itās an invaluable source of information, experience and advice from some extremely knowledgeable and friendly people. I still feel new here, dx July 2015 RRMS but I do feel Iāve progressed from the āNewly dxā board to the Everyday living board. Iām 59 now, so it looks like a lot of us were a similar age on dx.
Pollsx I kind of live in between Leeds and Bradford so I actually go to Bradford for all things MS. I hear itās very good but I have no problem with Bradford at all everyone has been great. Takes along time to get to see anyone but thinks itās like that everywhere
Iām a 20 year veteran. Pretty disabled now, but for people early in diagnosis thatās not the inevitable future someone with RRMS ends up with due to availability of DMDs. Itās not even the inevitable result of progressive MS.
But I do understand what you mean about your ānew lifeā. The fact that you as a person havenāt changed doesnāt mean that the reality of your life remains the same.
The MSS forums are a massive source of support for many people. And for some of us, they are where we find commonality with other people with MS (plus Poll aka Boudica). āTalkingā to people who may experience some aspects of life in the same ways you do can be invaluable. People without MS, or some other potentially degenerative illness, canāt really understand the actuality of our lives.
So welcome to the club that we donāt want to be in, but are very grateful that it exists nonetheless.