Thanks to everyone involved with the forum,you’ve answered a lot of my questions about ms in your general posts. All new to this and its so hard,no one seems to give a toss, diagnosed and left to fend for yourself without any explanation,is it me ? Sorry about this,just feeling down and alone.
Hey Snoopy your not alone, i know it can feel that your fighting this on your own but your not, keep coming in here and the guys will help you out and give you advice or just chat to you… try and keep positive about things and keep your chin up xx
Hi Snoopy, Sorry you’re struggling at the moment, but make no mistake …we all care and we DO give a toss! It is so hard and we all understand because we’ve all been there… but I promise you it does get easier to cope with. Come back whenever you feel the need to chat or ask questions…you’re not alone. Take care of yourself, with best wishes, Nina
Hi Snoopy
Welcome to our friendly little “gang” you are not alone, we are all here together.
Pam x
Hi Snoopy and welcome to the gang!!! Yes the trouble with PPMS is they just leave us to get on with it. However… you have now found us and this is the BEST place to be for PPMS or SPMS folk. Come and ask questions… we have a huge amount of knowledge between us… have a laugh, a cry, a rant… whatever! Glad you found us! Pat xx
Hello Snoopy, even my nearest and dearest (despite their best efforts) struggle to fully understand the consequences of PPMS and its physical limitations, together with feelings of hopelessness or helplessness, knowing that things are changing. There is a lot of help you can call on-this site is a good starting point, plus some of the MS based Twitter feeds. I always say that with MS you know who your friends are! Best wishes, Steve.
Thank’s for all of your replies.Had to take a couple of days off work due to a change in medication,will be back on form soon i hope,hands and feet giving me a lot of grief at the moment,don’t know how much longer i can manage to work,scary when i’ve got three daughters to support and a pretty hefty mortgage,only time will tell .
Thank’s for all your replies,had to take some time off work due to changing my medication hands and feet giving me grief at the moment.Don’t know how much longer i can work,pretty daunting when i’ve got three dependable daughters and a hefty mortgage.Suppose things will work out eventually,PIP are taking their time applied last september had my atos assesment last month everything seems so long winded,moan and groan over x.
Just a thought Snoopy, do you have critical insurance on your mortgage, cos ms is a recognised condition.
Hope this helps.
Pam x
Afraid i don’t,the wife left me 7 years ago after re-mortgaging,spending the excess money on crap then had the cheek to die,leaving me with my three beautiful daughters to look after,what with ms and this it’s a tough life,thank’s for the suggestion though.
Hi Snoopy.
I was just diagnosed in November so thisw is quite new to me to. In my short experience, this is th best place to be and everyone here.
I hope you are well,
K
You are so right,got more positive help from here than anywhere,great forum, great people,thanks to you all.
Hi & welcome Snoopy.
MS is a bitter pill to swallow, it took months after diagnosis before I could manage more than a couple of days without tears. Now, I want to fight it a lot of the time but have days that I just want to curl up and hide too.
I hope you like it here, I’ve found the support here amazing
Sonia x
Snoopy welcome to the board, cant say I am not surprised you are feeling down when it is all new its hard and it dont get any better I was diagnosed 20 years ago and still cant get used to it. I said to the wife 2 days ago I went to walk from the stairlift, I mean proper walk no frame I actually forgot I cant walk and havent for years. I would advise a good chat with your GP tell them exactly how you feel and I mean exactly no holds barred. See about the MS nurse and get in touch with social services for any addaptments like hand rails frames etc all thios stuff is out there USE it because you need to make your life as easy on yourself I have gone from one walking stick to two then to crutches then to frame then to wheelchair then to electric wheelchair and eaach thing has been to help ME not anyone else, yes I have a wife and the stuff helps her but dont refuse aids to make your life more bearable. Don
Hi Snoopy and welcome again. You’re right, you do feel alone and struggling at first. Family and friends try to help but no one understands all the symptoms and changes except those in the same boat. It’s hard in the beginning but I must agree with the others when they say it gets easier. I was a single parent trying to cope too and have sympathy. It’s a big job on its own when you’re healthy.
I had to stop working when my symptoms got worse, it’s not the end of the world I promise. If you’re not in a well paid job you might get help with the interest on your mortgage, I don’t know what your situation is but you might qualify for Disability Living Allowance even if you’re still working if your symptoms affect your day to day living.
This forum was a lifeline for me on dx and I’m sure everyone will help you too. Just don’t feel alone, there are loads of people who feel the same way but with help and support things fall into place. Have you got an Occupational Therapist? They are wonderful making life easier at home. Take care and keep us posted.
Cath xx