Hey folks! New to all this, currently in the grey area waiting to be diagnosed with MS by the nhs, have been off work the last 4 months due to symptoms of fatigue, balance and abit of optic neuritis the odd time, it’s a scary place to be!
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Hi Ginger_Matt
Sorry to hear you’re on this very uncertain journey and I wish you all the very best whatever the outcome is.
I can confirm that the contributors on this forum all support each other through their diagnosis pathway and offer lots of amazing advice along the way!!
take care
Anita
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Welcome 
Sorry to hear you are having a tough time at the moment. This forum has lots of lovely knowledgeable people and is a great place to ask questions whilst you are waiting for diagnosis process!
Thanks folks I really appreciate it! Yeah learning it all atm! I finally got a cancellation for the end of the month with my neurologist, they said I should get an oct eye test aswell and have the results ready for my appointment etc! It’s killing me not having a plan etc I just wanna get out with my dog 
and go on our adventures in some capacity! Plus the financial stress of it all as I am off work atm
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Thats so brilliant you managed to get in on a cancellation!!
Really hoping they can sort you a plan to get you out on adventures and back to work as quickly as they can… but that being said don’t rush or push yourself too hard because you want to make sure you recover to the best place you can be 
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Thank you! It’s scary how unknown or familiar it is! And my poor dog doesn’t understand I can’t do what I usually can! Hopefully things can be put in place to get me back on track to some capacity! But I am all ears and eyes on any advice I can get, gonna spend my wkend reading alot of posts!
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Hi @Ginger_Matt , you are in the right place for emotional support and learn from others on how they dealt with similar challenges or how to find answers to questions you may have. Hope you’re ok and are getting all the support you need, but above all stay positive!
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Hi Matt and welcome to the forum.
It can be a really scary place, the not knowing. I hope that you get some certainty soon.
And you may have seen, if you do have MS, there are some really effective treatments nowadays.
I wondered if you’d consider going for some counselling or therapy to help you process what’s going on for you at the moment. You deserve to be supported.
Wishing you well,
Alison
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Hi Matt
I am going through similar to you right now as well, I am waiting for an mri scan but everyone I’ve seen medical wise think ms as my symptoms and flares started in 2021 but this has all come after just being fobbed off by pervious gps with fibromyalgia
Sending hugs to you
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It’s very scary at first . For me I didn’t want to know, once I learnt what they thought it was, after been diagnosed it turns out I’d had it for 10 years. I thought well this is OK I’m not too bad. There is no medication for me as I’m now on progressive MS. But it’s not the end of the world. Ive lived a full life, visited quite a few countries, I feel blessed diagnosed at 35 still carried on got a little scary up a black run sking when my legs gave up on me. Im now 63 not mobile enough to walk, life is a challenge sometimes fatigue is a nightmare. However I’m here I make the most of every day it’s just different 
chat on here gather information remember we are all different. But we do know what you are going through. 
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Awww it’s an awful journey isn’t it! Thankfully had private healthcare through my employment and got all my MRIs etc that showed MS being the main cause but they cudnt diagnose me, so after 5 months of being on the waitlist of the nhs I have my 1st appointment with my neurologist on the 27th hopefully it’s a straight enough road for a diagnosis so financially feeling the pressure etc as I haven’t been at work sadly!
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It’s funny isn’t it looking back after the symptoms etc I have def been going through it the last 2/3 years I am def not as active as I used to be, I can’t play any sports or workout due to my balance etc and fatigue is absolutely shocking!! Hats off to you! Black runs! I was 1 step away from a black run, never had the kahunas to do a black lol! Awww u sound very positive throughout it all! It’s refreshing to hear! Esp as I am 37 and still soo much I wanna do!!
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Matt you can still do it, you just have to work out how. I used to ride a motorbike i can’t now so we bought a side car it gets me out with the gang. It’s just finding different ways to accomplish your goals. Nothing isunachievable it may need to be tweaked not how it’s normally done but what is normal?? ITS WHAT YOU MAKE IT . Be positive Matt to be honest normal people scare me 
we can do what we want. 
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Amazing!!! No I do know what my body will do, but my balance is bad that I can’t play sports or go running, I have my 1st appointment with the neurologist tomorrow so hopefully that’s the start! Esp in this gd weather!!!
Just checking in to say hope all well well at your appointment! Did they give you info for a plan ahead?
Hey! All went well, the neurologist confirmed it’s MS went through treatment plans and all that after another physical exam, do you get the official diagnosis in a letter form?? She has put together a letter to be posted out to me with my options for treatments and the local MS nurse and all them good things, but she seemed lovely and was very reassuring, she said she is gonna start me on oral medication to start with to see how I respond etc, thanks for checking in! I am mentally exhausted after today
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Glad to hear it all went well!! Not surprised you exhausted… they sure cover a lot in those appointments, it can be a bit of a whirlwind!!
I don’t know if same for every one but I received a letter through post that was sent to GP which had diagnosis, what happened at appointment and the plan forward. Took a few days to be written up and was available on NHS app first then arrived via post a few days after that.
hope you get some good rest after the appointment!!
Well, at least now you know, even though it’s never nice news to get. The bit about a diagnosis letter did make me smile because it reminded me that I never did get it in writing and still haven’t, 25+ years on. So don’t hold your breath on that one. But you’ve got your diagnosis now and soon you’ll have a treatment plan and that’s the important thing. Onward and upward.
It’s only took 5months of waiting on the NHS which I think is fast but symptoms have been a couple of years! Haha I know how does it work as in work I have health insurance for critical health care etc and I am down on 50% of my wages so I was just assuming I get it in black and white lol, but I don’t think she would be discussing treatment etc with me and passing details of the MS team for shits and giggles, I am just glad to be out of that awful limbo land place! And I got a few bits of info I didn’t know etc so a mentally draining day to say the least! But finally feel it’s a step in the right direction!
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Oh you’ve got it all right, same as me, letter or no letter! 
I don’t think either of us will escape on a technicality.
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