Hey!!👋🏻

Hey folks! New to all this, currently in the grey area waiting to be diagnosed with MS by the nhs, have been off work the last 4 months due to symptoms of fatigue, balance and abit of optic neuritis the odd time, it’s a scary place to be!

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Hi Ginger_Matt

Sorry to hear you’re on this very uncertain journey and I wish you all the very best whatever the outcome is.

I can confirm that the contributors on this forum all support each other through their diagnosis pathway and offer lots of amazing advice along the way!!

take care

Anita

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Welcome :waving_hand:

Sorry to hear you are having a tough time at the moment. This forum has lots of lovely knowledgeable people and is a great place to ask questions whilst you are waiting for diagnosis process!

Thanks folks I really appreciate it! Yeah learning it all atm! I finally got a cancellation for the end of the month with my neurologist, they said I should get an oct eye test aswell and have the results ready for my appointment etc! It’s killing me not having a plan etc I just wanna get out with my dog :rofl: and go on our adventures in some capacity! Plus the financial stress of it all as I am off work atm

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Thats so brilliant you managed to get in on a cancellation!!

Really hoping they can sort you a plan to get you out on adventures and back to work as quickly as they can… but that being said don’t rush or push yourself too hard because you want to make sure you recover to the best place you can be :flexed_biceps:

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Thank you! It’s scary how unknown or familiar it is! And my poor dog doesn’t understand I can’t do what I usually can! Hopefully things can be put in place to get me back on track to some capacity! But I am all ears and eyes on any advice I can get, gonna spend my wkend reading alot of posts!

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Hi @Ginger_Matt , you are in the right place for emotional support and learn from others on how they dealt with similar challenges or how to find answers to questions you may have. Hope you’re ok and are getting all the support you need, but above all stay positive!

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Hi Matt and welcome to the forum.

It can be a really scary place, the not knowing. I hope that you get some certainty soon.

And you may have seen, if you do have MS, there are some really effective treatments nowadays.

I wondered if you’d consider going for some counselling or therapy to help you process what’s going on for you at the moment. You deserve to be supported.

Wishing you well,

Alison

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Hi Matt

I am going through similar to you right now as well, I am waiting for an mri scan but everyone I’ve seen medical wise think ms as my symptoms and flares started in 2021 but this has all come after just being fobbed off by pervious gps with fibromyalgia

Sending hugs to you

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It’s very scary at first . For me I didn’t want to know, once I learnt what they thought it was, after been diagnosed it turns out I’d had it for 10 years. I thought well this is OK I’m not too bad. There is no medication for me as I’m now on progressive MS. But it’s not the end of the world. Ive lived a full life, visited quite a few countries, I feel blessed diagnosed at 35 still carried on got a little scary up a black run sking when my legs gave up on me. Im now 63 not mobile enough to walk, life is a challenge sometimes fatigue is a nightmare. However I’m here I make the most of every day it’s just different :relieved_face: chat on here gather information remember we are all different. But we do know what you are going through. :slightly_smiling_face:

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