hey

New diagnosis and before diagnosis
1

hey im Levi, 23 years old i went into hospital feeling wierd 3 weeks ago. first of all i had numbness in my left hand all day i thought maybe i slept funny on it the night before. then the next day i started my new job i still didnt feel right on my way home on the bus i was all of a sudden stuggling to keep my eyes open i felt dizzy too. when i got of the bus i couldnt walk straight see properly i just felt so dizzy and unbalanced buy thiis time i had numbness in my left foot and leg and the side of my face, i rang my gp they told me to go a+e so i did.

i got seen by so many different doctors one said he wanted to keep me in, then the morning i saw another he tried sending me home blaming it on migranes, i told him i didnt and havent even got a headache so how can it be, so i waited to see a neurologist, he said he wanted to send me for an MRI scan i had to wait a couple days for that, as the days were passing it got worse and worse i didnt have a clue what was going on. i got the results of MRI he said i had 7 spots in my brain and 1 on lower spine and then he said MS i didnt really know what it was but now do, he said he wanted to do a lumber puncture to make sure i said ok.but then half hour later he come back said he had another look at my scan and he dosnt want to do a lumber punture because he is certain its MS and dosnt want to put me through that if h. e is certain.

i had a course of steriods and some of my symptoms have eased of but still got the tingling and ms hug. i dont really know what to expect from here, im still trying to take it in and get my head round it. really not sure, i thought maybe if i spoke to other people it might help so if any one wants to chat feel free to message me.

sorry i write so much xxx

2

Hello and welcome Levi,

You poor thing having it hitting so hard all in one go. Are you now going to see a neuro and have you been assigned a ms nurse? I do hope so. It will take some time for you to really take in what you have got and come to terms with it. But you have come to the right place the people on here are very helpful and kind. If you want to moan, grumble or shout, well that’s ok as well. Everyone is different and ms makes what ever twist and turns it feels like. Did they say what type of ms you have? There are many, many drugs you can take to help ease neuropathic pain and spasms. Have you informed your new employers of your plight and are they being kind to you, I do hope so? In the mean time I send you (((((HUGS))))) and any questions you have just ask away and someone will be able to answer for you. Take care.

Janet

x

3

Hi Levi, and welcome to the site :slight_smile: Sounds pretty scary :frowning: I’m assuming that you must have had something happen in the past too for them to diagnose MS - the rules are that the patient must have had at least two attacks. If you haven’t, then you might want to ask for a second opinion. It sounds like the steroids are working well :slight_smile: They keep working for several weeks so hopefully your remaining symptoms will follow suit soon. Fingers crossed :slight_smile: Karen x

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Iv had little things happen in the past, im seeing the ms nurse next Tuesday then another MRI scan in December then the consultant in January, and they said I got relapsing remitting ms, my work are being very kind about it all so that’s good :slight_smile: Levi xxx