Hello new to this and a bit scared.
Had optic neuritis diagnosed 1 weeks ago. This is slowly settling, but the fatigue i have had for weeks persists (I am hypothyroid and had my levels checked a month back as the fatigue can be a sign that my levels are climbing. All normal). This morning i had a numb feeling in my R leg again, 3rd day on the trot.
The opthalmologist mentioned ms re my eye but said nothing would be done (ie referral to neurologist and an MRI scan) until it happened again.
The fact it has been mentioned at all and then brushed aside has made me a little scared!
Any help, views or advise greatly appreciated.
Hi densfan
I was you about 6 months ago! I was given the same brush off. ON is scary enough because it affects your vision, and then someone mentions MS and for me, furious consultations with Dr Google ensued. I have managed to calm down on that front. At the end of the day, I should only really take my health advice from health professionals who have actually seen me for themselves.
I went to my GP, and I am extremely lucky as she was very understanding and listened to all of my concerns. She referred me to a neurologist so that I could discuss things.
After explaining some other symptoms etc, he referred me for an MRI of my head and eyes. I am going back to him 3 months after that initial consultation as I have developed new symptoms.
I guess my point is, if you can put it to the back of your mind and move on with things, then you absolutely should as I made myself sick with worry at the time. However, if you want further testing or advice I would say go back to your GP and see if they can help. Explain the anxiety this has caused you and ask if any further help or advice is available to you.
I hope this helps and I hope you get the help and/or aswers you need xx
I had optic neuritis in December and went to A&E. It was up to me whether I went for an MRI - they may have given me the option because I had blurred vision in May last year. Back then I went to my GP and it was two months before the “urgent” referral came through, but luckily it had cleared up within a few days. The neuro (in December) said in 5% of cases it doesn’t clear up as well, can you imagine if I’d been half blind for two months?
If you do think you have another symptom, see your GP (who is hopefully better than the series of locums at my surgery).