I hope you are all well.
I need a bit of advice. I was recently diagnosed with MS (O-bands neg) in January and I have had some symptoms since then. I have had a MRI with GAD on my brain and spine completed and there are not active lesions since my last MRI in November. Which is obviously great news, but now the neurologist wants to retract the MS diagnosis completely and he is now suggesting Functional Psychological Driven symptoms instead - even though the MRI showed a change in lesions in November since my last CNS inflammation in 2009/10.
After my last appointment two weeks ago, where he suggested that all my symptoms were organic in nature and probably due to MS, he seems to have done a 360 degree turn and stated that my symptoms since January are all psychologically driven and they are looking at the scans again to rule whether this is definite MS or not.
I feel angry, upset, frustrated and other such emotions. It is not that I want MS - I have been actively been in denial, whilst medical professionals keep telling me to accept my limitations and listen to my body - it was that we thought we had a solution to the medical symptoms that I have been having and after my previous appointment, we thought we were on the road to some treatment that may/may not alleviate those symptoms and allow me to move on.
They are looking at the scans once more and I have yet another appointment next week to discuss further.
I am at a loss.