So 2 weeks after my 2nd AZ Covid jab (not sure if related)I am struggling to feel my feet … decided the time has come to get hand controls on my car to keep my driving. Having to stop for a couple of weeks which has upset me as love driving whilst they get fitted etc.
So my big problem is I am undiagnosed, only diagnosed loosely with Benign MS despite having every symptom going since 2001 - my MRI shows no lesions therefore I have no diagnosis or medication or steroids or physio - nothing! I started in 2001 with Optic Neuritis, then another big episode in 2011 with Transverse/Cervical myelitis which left me in a mess, mainly my legs affected, weak, numb, cant walk straight, leg fatigue - but no pain apart from stiffness. I never fully recovered and numbness always with me but sometimes better than others.
Having a bad week, cant feel pressure in my feet, rang doctor he was near useless, saying he can’t give me steroids, but he can check my b12 levels and if it gets worse go to AE and he’ll pop a note to neurology (who havent rang me in 18 months or gave me feedback from my MRI last year but I know no lesions on it). B12 could be another issue I guess, so best to rule out.
So what now? Does nobody do anything until I’m in a wheelchair? Its was gradually getting worse but this week boom! much worse. I could use a full diagnosis to get help with making me better. Is this a struggle other people have - I am in Surrey.
Any advice on how to get these feet better, what to do next, going to A&E will be fruitless, they will just refer to neuro who will take 6 months to get back to me and I can’t drive there anyway. Also dizzy, tinnitus and anxious and generally out of sorts, also pre menopausal … falling apart basically now I’ve hit 50.
Thanks for reading x