Hi, I’m Terry a 68 year old male. Diagnosed PPMS about seven or eight years ago. For a few decades I’d been treated for a number of ailments that had some of the medics scratching their heads a bit. The MS diagnosis was like a lightbulb moment, now it makes sense I could hear. With my progression being so slow I guess I’ve been relatively lucky with the effect of my symptoms, however, this last few months a couple of things have become particularly distressing. Looking forward to meeting the community for help from people who know what I’m talking about.
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Welcome, Terry
I’m 61. Like you, my diagnosis was much delayed and not helped by a misdiagnosis too. Only diagnosed 3 years ago but full-on PPMS for 5 years before that. Like you, I had unexplained events for years. Not RRMS bt could have been CIS - we’ll never know.
So, you’re not alone. MS is notoriously hard to diagnose. Can only speculate how things would be now if I’d been on meds, but not a good idea to dwell on such notions - it is what it is.
Graeme
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