Hello , new here, diagnosed in 2022, want to introduce myself

Welcome and introductions
1

Hiya , I’m Patsi , 33 , from Germany , living in the UK.
I came to the UK before brexit to be with my now-Husband and unfortunately for the two of us we’ve both developed life changing illnesses in the last 3 years or so. He’s got ME/CFS, I was diagnosed with RRMS at the end of 2022, after an episode of Optical Neuritis. Looking back at past events long before I came to the UK, I likely have had MS for about a decade or so now, however this is only backed by anecdotal evidence.

I started treatment with Tecfidera but it was not a good lifestyle fit, so I switched to Plegridy which was fine from a side effect and lifestyle choice, but unfortunately did not work as well as it should have.
I will be starting with Ocrevus in December and…
I think that’s about it! Happy to meet you all.

2

Hi
Hope the Ocrevus works well for you :+1:

3

Crumbs, that’s bad luck, both of you getting potentially life-changing diagnoses. You just never know what’s around the corner in life, do you?

I have heard very good things about Ocrevus and I hope that it does the trick for you.

4

Hi Patsi , I’m David aged 70 and diagnosed with RRMS about 18 years ago - also following an episode of optic neuritis . Been on Avonex since diagnosed.

Sorry to hear about your husband’s ME/CFS. I have an old school friend with the condition. She too is 70 and although she does get tired she recently organised a class reunion and group birthday party

5

Hi I’m new to this I was diagnosed 2018 pps not seen an ms nurse in all this time is this normal