Hello everyone. I thought I’d let you know what’s been happening. I saw my Neuro on Monday. I was told by my Crohns specialist that I don’t have MS. My GP tells me I have MS. Now the Neuro has seen my MRI and because I have several lesions in my brain he wants to have a definate MS diagnosis before putting me on treatment. I’m still on Humira withdrawal for 4 months now, instead of three. This is to rule out the Humira being responsible. In the meantime all he can do is treat the symptoms separately. I’m due to see ENT for my buzzing ears. I’ve got Orthotics next week to help my left leg and a wheelchair fitting next month. The Neuro said he can’t say a definate yes or no to MS as it’s still a possibility. It may also be the case that I never get a diagnosis. I’m also going to see continence nurses for catheter fitting. So, I’m back for a while I think in limbo land. It’s quite frustrating as only the other week I was rejoicing that I don’t have MS and now I’m back to square one.
anyone else been here? It’s getting boring I tell you. One week they tell me one thing, the next week another. Ah well. In the meantime I’ve been getting on with things best I can, my son has gone to Uni ( sounds like one big party to me to be honest!) and lots of things being changed in the garden, so been quite busy.
So that’s me. Hope everyone is well. I’ve also had a hard time being able to log in to my account for the last 2 weeks. Not sure what’s going on there. X