Well i’m well and truly confused now. Just as I had come to terms with accepting the news that I had MS and the emotional c r a p which goes with it. This happens.
I saw the Neuro a few weeks back now, where he said (or at least the wife and I thought he said) that I did have MS. He said that a lumbar puncture which is used to diagnose MS is not required, as my treatment of the disease would not change with having a lumbar puncture. The outcome would be the same.
Anyway, a letter dropped through the letterbox on Saturday morning which had been sent to my doctor and I had been copied in.
The letter states that “after studying the MRI head and c spine images, it is agreed that the appearances are sugggestive of demyelation. No further investigations are requested at this current time.”
A letter has been sent to the local MS nurses asking them to contact me as I have now been given a “new” diagnosis of “likely Multiple Sclerosis” and their input would be appreciated.
Is this normal? Should I have told the DVLA and my employer that I have “likely Multiple Sclerosis” and not official Multiple Sclerosis? like I did tell them, much to my annoyance. I wanted to keep this confidential and now I have put myself into a very awkward position at work regarding my ability to work.
What happens now? I guess if i’m lucky I get to see a nurse, but then what? Do I have to wait untill I have another major relapse and I lose control of a limb or bowel or something.
I’m already four weeks into an episode where I am having severe muscle cramps in my right leg and walking is becoming more and more troublesome.