Hello peeps! I’ve joined pre DX as I am about to undergo tests for MS as I have had random issues over the last few years … well longer than that if you take into account other random events during my life.
I pretty much have the same story as most people, kept going to GP when I had ‘bad’ problems, told it wasn’t anything they could find a reason for and told to take pain meds until it went. Didn’t go to the GP over the small issues like chronic fatigue because to be honest if I ever mentioned it to anyone around me I’d be met with “Yeah, I’m tired too” and I’d think “No, this is MORE than just tired” but feeling like a goof I’d bumble on and ‘cope’.
I am very lucky that I work from home on my own business so taking time out to do something different or work during the night wasn’t an issue… funny how wide awake I feel between 3 and 6am!!
Anyway to cut a long story short (long story if I am DX with MS) the final straw was when I had a mad attack of sciatica two weeks ago, I literally woke up one morning and as I entered the bathroom PING my sciatic nerve started to jab at me and shoot down my leg like a crazy horse. It was so bad I couldn’t walk or sit still as it was relentless… I was miffed, I’m not overweight and I haven’t had any back injury…then on day 3 when my Mother was due to bring a walking stick round for me (as a joke but really I wanted it!) I woke up and the darn thing had gone! I could skip, hop, go up the stairs without yelping yay!!! Only… now my right knee was playing up.
Do I tell my husband or will he look at me and think “Woman! Lately everything hurts and then doesn’t!” I felt like a Münchhausen.
So I was sent to have complete bloods and an eye test… optician tells me that in the short time since she last saw me my optic nerve in my left eye has (some word she used) and did the other test I was having include MS… “Erm, I don’t think so?”
I went back to the GP on Friday and he’s all ready and hyped up saying he will extend my appointment into his lunch break as he wants to do some tests. He makes me walk about the office, hits me with a long hammer all over the place, looks in my eyes, asks me lots of questions and then says “I’m going to admit you to hospital today” I go and wait in the waiting room and hear him on the telephone to the hospital “44 year old lady…demyelination… optic something… presenting MS”
So I am sent to the hospital, they take blood and ask me more questions and make me walk about some more and hit me with the hammer some more and then say I must have an MRI with Gandalph Linen or something injected into me and a lumbar puncture and I’m sitting there thinking of Lord of the rings and the band Spinal tap and he says “On Tuesday the earliest”…
There began my begging to be sent home, no way could I stay there for 4 nights, I am not a relaxer, I am not a quiet person… our family are loud, active, party loving and that ward was throbbing with the energy of 4 ladies in their 70’s … there was no party going on in there… and not even a TV to take my mind of things.
So… I was sent home and am now waiting to be called in for the tests. I sat in bed for an hour this morning taking all the metal beads out of my dreadlocks and thinking what a bizarre day Friday was and wondering what will be injected into me and how it will feel. I’m also thinking “Who will clean the hens if I have to stay in?!!” as my rather large and amazing family all seem to have an aversion to hen poo… but not the eggs! lmao
I’m pleased finally something is being done but was expecting Lupus or Fybro’ or even another tumor (had a parotid one removed two years ago) but now I have MS to add to the basket of “could be this”
So… hello everyone and I may be staying or I may be going but I sure need a shoulder or ten to lean on at the moment as I haven’t a clue about what’s happening!