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Hello all, very new to all of this!

Hi All,

Just wanted to say hello. My neurologist called yesterday to say that my last spinal fluid test had came back positive, between this and the brain lesions he felt more than certain I had MS, but wouldn’t say 100%, is this normal? It all started in Feb with Optic Neuritis, then a month or so later my tongue and the right of my face got all numb and tingly. Had other odd things too. Anyway all of the doctors (who have been lovely) have said all along not to worry as the MS drugs now really help and I am just waiting on the MS team to contact me so I can get a hold of said drugs.

I am feeling very in limbo right now and just trying to get clued up before the MS team do get in touch. Today wasn’t great as I told my boss, I am a web designer and he is insisting I come into the office soon to work so I can answer the phone. I was already super cautious with COVID and not sure how I could get into the office without public transport as I work in the city and parking is a fortune. I am more than aware that my symptoms are very very mild and that I should be counting my lucky stars, but this has thrown me.

I am just rambling now. Anyway apart from the work thing I think I am coping ok with it all, please tell me I never have to have another lumber puncture, that wasn’t nice! But I have accepted that it is what it is and I just need to get on with things, would be so much easier if COVID would just bog off though!

Anyway if you got this far well done and thank you!

xx

Welcome to the forum Lindsey. It seems like a lot at first, but you seem to have a great attitude. Please make sure you know what your legal rights are as you venture on back to work.

Yes, the DMT (disease modifying therapies) are great these days. Luckily, more employers know about MS too these days.

wont say welcome you know what i mean.
Your employer has a duty of care to make sure they adapt your working to your disability. chat with MS society on their helpline. they can advise you.

i cant see why you cannot work from home you have been already.
xxxxx seems odd your neuro hasnt just said you have MS and the team will contact you or whatever. xx

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Thanks, I am a cheery optimistic person so the hardest part so far is to actually tell all the doctors how I’m feeling, that and all my family and friends when I don’t have a clue what this actually means for me. I called the ms society helpline yesterday and they gave me other numbers to call for advice. I might call them today as I am getting very stressed at the prospect of getting to and being in work. I have a four year old and need to stay healthy for him.

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