I agree that ‘ooh, you’re looking well!’ comes up all too often. But the one that gets me is ‘but you always seem to be so positive and cheerful!’ Yes, that’s because I’m careful not to inflict my usual sweary weeping heap of self pity on you. You should see me when I’m not in public…
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That’s why I guys, you get the problem that is MS. Take care, M x
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Agree with lots of what has already been said, but one thing that really rattles me cage, happened again this morning…
Having done shopping with hubby and decided a coffee was called for, only for the lady serving to ask my husband “do I take sugar” to which came his usual reply…I don’t know, you best ask the lady yourself!!!
Just cos I am in a power chair, surely should not mean I have lost the use of everything!
I just thought of another one…I pay with my card, bu5 instead of lifting the card machine down to a level I can reach, they ask my hubby (who they incidentally don’t know is related to me) to put MY pin number in. I am sorry to say I do normally ask the assistant if they would be happy giving a taxi driver their pin number, which results in them quickly lifting the machine down.
Society should not make life even more difficult than it is, and in some shops a little bit of disability awareness training would not go amiss.
Sorry about my rant…I will behave now!!
Pam x
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Ooooohhhh!! That is so annoying, I can stumble about quite happily with my crutch and people treat me the same as everyone else. The minute I’m in the wheelchair I get that as well. When that happens I want to turn into the Incredible Hulk.
Mags
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The ‘you look so well’ has changed a little for me - I’ve realised that the Tecfidera flush has calmed a bit, I think the build-up of them has given me a general glow now
Sonia x
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I usually get:
“I knew someone with MS. They’re dead now.”
or
“I know someone with MS. Of course, they’re not as bad as you.”
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Can relate to the one hcd… one of my neighbours said ‘Oh I know someone with MS. She’s dying of it’. Thanks for that!
Another said ‘I had that once. It was terrible. Doctor gave me antibiotics and that cleared it up’.
(Should add that I live in sheltered and most of my neighbours of over 80)
Pat xx
So your neighbour had it once eh, …well, …er, …um, … you certainly can’t get MS twice!
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I have jut returned from the US on holiday, Glasgow team fine, USA team fine and very enthusiastic(probably their tipping system) , gatwick the girl deemed i hurry from the toilet as flight had been called , i had told her previously that i could go to the gate and wait but she said no we had to wait, she then proceeded to lift my legs into the leg support of the wheelchair at this point i screamed and said i can manage my own legs, her colleague on the way out discussed me with hubby he said i didn’t pick it up , i said you were not the one been ignored gatwick you need to do better.There are two camps of people the ones that get it and the idiots that dont
trish
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I reckon a Taser could even things up a bit… Luckily in my head this would be legal.
That is cool or even ultra cool to have colour coordinated crutches
You certainly have got style BobLatina
I am waiting for a new electric wheelchair (been told I need it but getting it seems harder than telling me the old one is no good) so when I get it I am going to Pimp it Up
Don
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Loved all of them and relate to them as well, mine is silly, Im stuggle opening a packet of crisps or getting a twix out of its wrapper and my sister in law will always say "I’ll do that for you’ I reply I am a sixty year old man not the tree year old child. Next time she is here for lunch she will say the same …one of these days I will swing for her
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Some of these are really funny
i’ve only had 2 comments
-
Never mind Jem, you’re still very young and i’m sure they’l find a cure soon
-
after i’d parked my car in a Disabled bay at Sainsburys and then struggled to get to the boot of my car to get my wheelchair out, i heard a woman that followed me into the store say to the person she was with “She does’nt need that wheelchair, i saw her walk just now”
Jemma
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Now I just wanna know what you put Pud !
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I’d be tempted to head to nearest church with your wheels and show them a miracle Alf Garnett style. … (apologies to all extreme/over sensitive Christians in advance. …)
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I never know what goes on & that’s how some prefer it.
Staying indoors does not help. Let’s all toe the line & be fine.
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What’s the matter with your leg ??
It sounds an innocent enough question but experience tells me they’re not really interested in what the matter is. So I say 2 things if I don’t know them, I say Ive just had an operation on my back and if I do know them I say is this the first time you’ve noticed.
I never tell anyone I have MS anymore, when I have in the past they haven’t been at all helpful. Any woman that I’ve told when trying to start a relationship has quickly made her excuses !!
Cheer up / smile /dont look so miserable.I struggled with those type of comments for a while as they are obviously derogatory without being downright rude. So I just ask ’ is that an attempt at an insult ’ depending on the reply, I will either directly insult them back by saying something like I may look miserable , thats because I have to look at you !! Most of the time a question as an answer to their question usually stops them in their tracks pretty quick.
Bottom line is in general people couldn’t care less what’s wrong with you and those sort of questions/statement are usually because they don’t like you for some mysterious reason unbeknown only to themselves.
I guess its just human nature to dislike the abnormal !!
How about this from my fairly fit and agile hypochondriac neighbour, although she does say hypochondria is the only thing she hasn’t got.
Well at least you ONLY have ONE thing wrong with you!
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“MS? What’s that then?”
“It’s multiple sclerosis.”
“What’s that then?”
“Sigh.”
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