Ha ha! I’m such a miser with the heat. I love to wake and see the blue cloudless skies…BUT…I will never ever again go on a hot summer holiday and whilst all the other mums at infant school are wishing for a long hot sumer they can’t understand it when I’m wishing for a cloudy one!!!
Ha ha!
Know how you’re feeling. Good luck
xx Nic
Hiya Jon, The heat is a real downer for me too…but a hot and humid day I absolutely dread as it wipes me out. But then I am not happy when it’s cold either as I cannot get warm despite having so many layers on that I look like the Mitchlin man… I made the mistake of having a warm shower the other day when it was hot and humid in the morning and ended up laying on the bathroom tiles before I had the energy to move again and had wiped me out for the day… yup still learning my boundries 
Allen
That happens to me often, really wishing we hurry up and get moved to a house with bathroom and bedroom on the same floor, lying damp and naked on the kitchen floor is not ideal (no room on the bathroom floor and the bathroom is off the kitchen). On the plus side at least the tiles are cool!
Hi John,
I have been so wiped out by this heat. I have been diagnosed for 7 years and I remember when I was first so ill that it led to my diagnosis. I couldn’t believe how quickly the fatigue came on nor how painful it was. I’d never experienced anything so crippling before and it still has exactly the same effect. Just having a shower this morning was awful and that was setting it as cold as I could withstand without it being actually cold!!
It’s really hard for people without MS to understand this sometimes so it’s great to have this place for griping about it.
Gayle
I’m great in the heat and even better when its sunny and warm
Its cold wet and really misserable here now and every bone in my body hurts I know of a couple off people like me,
I was in Turkey last year and the temp was in the high 30’s low 40’s and for the first time since I’ve got MS I could almost feel normal.
I watched the olympics the day it started and everyone seemed to be in there shorts and vests and wishing I was there just for the weather alone.
I really feel for those that are affected by the heat I see how it wipes my friends out.
I was at my consultant’s on the hottest day last week and asked him about it as I was completely wiped out. He explained (and showed me an animation on the computer) why we feel like we do with extreme hot/cold temperature.
Apparently, the heat causes the messages (that are erratic at best on our lesioned areas) to go even slower and much more erratically through the areas are myelin damaged. Therefore, any of our symptoms can be exacerbated e.g. I have a lot of spinal cord lesions and in heat/cold my legs feel awful, sensory symptoms are worse etc.etc.
He said there is a definite temperature range that is not at all helpful in our life with MS. It was so interesting to actually know why I was feeling so bad.
Hope that helps
Sally x
Well thanks Sally as the saying goes “You learn something new every day”