Hi,
Is anyone here in the older diagnosis period of 2005-2013 able to set me straight what criteria was used from Poser criteria, McDonald Criteria, or NICE Clinical Guidance 8 Care Multiple Sclerosis Primary and Secondary Care Nov.2003 in Northern Ireland.
My Head is about to explode as I see numeroeus failurees from three Neurology consultants who do not follow any criteria, mention it or come to my eventual diagnosis in 2013 and beyond ever using any words belonging to these three criteria’s. Not one of them used any criteria in my SAR of my medical information making my head spin just last year, as I knew something was up from the off in 2005. Just exactly what were they doing when they mention not meeting criteria for MS in 2006 one year and 1 month after initial symptoms.
Why was I not a urgent red flag puzzles me to this day as I have many sleepless nights over my outcome and disability that came on so quick for RRMS. MY Consultant in 2014 wrote the lines RRMS with symptoms is noted 2006.
Why were Two high signal lesion’s in MRI of 2006 not taken serious I have found out recently why, from something on my records. This has left me feeling very sick with strange head sensations.
Has anyone found out the delay in MS has been caused by the thrown words Functional Disorder? Why was my original and continued symptoms never taken seriously, is because of this wording? Why was no urgency for sudden loss of left sided power and numbness going into ulnar fingers not urgent for the hospital?
No clinic for 7 months from onset of weakness. Before seeing my MRI or what was on MRI. Plans were already in motion to send me to other department’s before any Scans had been done in that prior clinic, for physio to deal with. And Clinic mid 2006 was sending me on to Rheumatology next if symptoms didn’t improve. My MRI showed two high signal lesions in keeping with inflammatory demyelination.
This MRI by this point was one year fully out of date while I had multiple Neurological issues in that time, and time afterwards. So why did the neurologist do diddly squat about anything? No follow up MRI, no CSF draw on VEP or any other testing?
Even during my examination’s in his clinic I showed abnormally skin prick reduced sensations but said my neurological examination was normally!
That is not normal when something is wrong with your sensations and serious power in limb reduced. Nocturia issues as a male aged early 30’s which he did note in 2005 clinic. Is this a serious case of overshadow diagnostic care from a Neurologist, reading from a letter Functional Disorder before ever having a neurological issue in 2005? What would a normal neurologist say about this issue’s if that letter was not available ?
Also a urgent clinic appointment was cancelled but said I Did Not Attend for following month. There is no record of this sent out in my GP files just a DNA. Why would I not attend a clinic when suffering a serious neurological defect in my body?
What caused this to happen is it the letter or lack off care the concern? Did this cancelled letter or appointment happen due to the Functional Disorder mentioned?
Why Mention MS was looked at in a letter to GP, if not following up this care was required?
It could have been a stroke or other serious condition that left me at risk in all the years without diagnosis.
I was never tested for, or ever examined for ever!! Another thing is depression is everywhere in my hospital file not ever in my GP one even though I scored high for it in 2006 this was bloody anxiety from no one listening to me.
Can anyone help me in where do I go to have my case reviewed and no MRI is on record or reports anymore on the dates done is very strange? Why did the Neuro Physiotherapist letter also vanish on what she said? He has no diagnosis as oof yet and treatment stopping as i am making his symptoms worse. Why was she also not listened too? Can anyone help me here on this head wrecking moment on my Hospital file in a catalogue of errors? Thank you to anyone who can answer this.
IT took eight years for fully diagnosed with MS after hospitalization in 2013 after been told in 2006 my Lesions were incidental findings!