Hi , i was diagnosed with functional neurological distonia and pain , i have spactisity in my right leg along with deep cramp like pain in my calf . I was referred to a neurologist who is actually very good and has alot of time for his patients . Im on a cocktail of neuropathic drugs and i wear a a full length calipa to help me walk because of the spactisity. I have had yhis for around 6 years and at the beginning i had brain and spinal scan which were all negative apart from wear and tear in the spine . I also have bladder issues . I was retired from my job as a physio assistant for the nhs because of the disability. Im reviewed yearly , in the last year i have had issues with double vision and saying sentances backwards so im told . The issue i have now that in the last 3 months i have developed a numb thigh and feelings of creepy crawlies on my leg and a feeling if cold water dripping down my leg worsening back pain and numbness between my legs . I spoke to my doctor who was not happy to sit on it and wrote to my neurologist who has now wrote to me and said he is sending me for a MRI . I know that these symptoms feel different to any ive had before and they are not easing . I was wondering if any one has had similar symptoms and if anyone feel that could be MS . The other thing my neurologist went by when he was diagnosing me was i has a positive hoovers sign which many of my friends who worked in physio and spinal team feel this test isn’t often conclusive. Could i have some opinons please x
Hi, just had a quick google for functional neurological distonia and see the symptoms are very similar to some MS symptoms.
Bladder issues are also extremely common in MS.
When there is nothing obvious on an MRI scan, like lesions/demylination, it is hard for doctors to diagnose MS.
I have had PPMS for 22 years. I presented very PPMS like for years ie mobility problems, bladder/bowel accidents, spasticity and spasms in my arms and legs.
I was wrongly diagnosed in 2011, but finally got my Spinal PPMS diagnosis this year, after lesions were seen on my cervical and thoracic spinal cord.
I had to go to a very specialist hospital in Liverpool for this, where they had a much better knowledge of neurology than my local hospital.
Boudsx