will they find out whats up with me

New diagnosis and before diagnosis
1

Hi i am new on here. this all started 12 months ago. i woke up during the night with flu like symptons, my balance was off and my left side felt strange and a headache like ive never had before. tininus, bladder problems, pins and niddles to my left hand and foot, memory and speech problems.and also have a full body ache and muscle weakness, seen a neurologogist

had a mri scan which showed 5 or 6 white dots. in oct had a lumber puncher, think they lost results, has i went back to neurologist in dec, he said he wanted me to have, a lumber puncher, told him that i had one in oct, he told me he had no results. he said he would find them and give me a ring. he did ring and said he did not think it was ms, but increased my pregabalin.

now waiting for appointment with neurophyscology. i really dont know where to go from here. i got finished at my job cant do what i used to do, if i walk for half a hour i am exhausted. my spelling and writing as gone like a childs, i forget when i am cooking and walk away from it and do something else. if it was not for my partner louise i would be in trouble. sorr y for going on thanks Nigel n Louise

2

Hi Nigel, after 16 years of tests, being wrongly diagnosed with PPMS for many years, I will probably never know why I cant walk, have bladder and bowel problems, spasticity and spams in legs.

I have had 4 mris, 2 lps, 2 emgs, 1 vep and gallons of blood tests, but even tho I seemed very PPMS like and progressed quickly, my current diagnois is spastic paraparesis/cause unknown/possibly geetic, but with no known family history.

I wonder why 5 dots on an mri have not helped your neuro towards a diagnosis?

I`ve never had any vision probems, as is common in MS.

It certainly does sound like you have some kind of neurological problem

As you are now in the system, I hope they can find what is causing your difficulties.

pollx

3

I am just in limbo at the moment. Just wish someone one would say you have this. I could sort my life out. I feel awful on my partner Louise. We can’t do the things we used to do. I struggle with ever day life now.

4

Hang in there, hun. It will get better…you`ll find your way through, with good support.

luv Polx