I have been in Limboland for many years now. I won’t bore you with full medical history blur. Most recent symptoms have ocurred with my arms and legs.
I have ongoing spasms, and pains in my legs etc, but over the past few months my arms (from elbows to finger tips) have caused me great pain, and limited movement, for example, the pain feels like my bones are on fire, and my arms hurt to touch (bruised like feeling). Hands and fingers are swollen, tingly, and I find it difficult to pick things up. The biggest observation is when I attempt to eat and drink - I almost have to move my arm in a mechanical way, it doesn’t allow me to pick up a cup, I have to raise my elbow out to the side and slowly move my arm inwards to avoid it locking and then the pain comes at full force.
My legs have become heavier than ever. Most recent (new) symptom was last week while in bed. I woke in excrutiating pain in my left leg just above my knee to my upper thigh. it felt like a tight band on my leg/muscle - totally scared the life out of me because I was unable to feel it despite the pain! and couldn’t weight bare.
I know we all have different symptoms, but any support would be helpful if you have experienced any of the above. The delay to get dx is concerning me because i feel if i could just get on any kind of medication to help would at least enable me to get a sense of ‘stalling’ the pain in to further progression. I have definately got worse over the past couple of months.
PS headaches have increased along with cognitive/memory element too! hey ho!
love to all xx