Hi. Long time lurker - first time poster.
I have been on Ocrevus for a few years as was lucky enough to have it covered by insurance. I have a new job offer and their scheme does not cover it.
Has anyone experienced coming off it ?
Yes. I elected, in discussion with my consultant, to not have the next infusion, due tomorrow. Having had the first two, I’ve been immunosuppressed and picked up a few infections (cellulitis, UTI’s). Decision was the meds were dragging me down, plus, I believe I was one of the 30% who didn’t experience a slowing of my progression.
We’ll see in the next few months if I get stronger & healthier…
Graeme
Thanks for replying. It seems to help me a lot. And I dont really get ill or catch colds. Im nervous about stopping and may have to turn down the job and stay where I am. Going to speak to my Neurologist about it.
Hope it all goes well for you.
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