Groundhog day.............(another neuro appointment)

New diagnosis and before diagnosis
1

Well today I have another appointment (third in 9 months) with my neuro. Lumbar puncture results day, I think. I say think as I only had the procedure carried out less than two weeks ago, so not sure if the results are back yet.

I don’t feel very confident going into this appointment and coming out with any results, or at least, any resuts which I want to hear. I’m sure I am going to get told that I need more tests and get patronized again that any current numbness or leg stiffness I have, is all in my head. Oh yes, and my aching eye is down to migraines!

The mad thing is, I am sat here typing this and I feel that I a stuck in a massive deja vu. I’ve been stuck in this predicament for 11 months now and these neuro appointments have all been the same, they go like this:

I wake up, have a cup of tea, post on here, goto the bank, withdraw ten pounds, get on the bus, go to the hospital, have a coffee while I wait for the appointment, see the neuro, get nowhere, get told “see you in a couple of months”, get on the bus, go to work, get home, and this repeats every couple of months.

I’m not officially ill, theres not actually anything confirmed wrong with me! (yet) So why am I going through all this? I’m on no medication, I have a GP who tells me to contact the MS nurse for problems, I have some random MS nurse who tells me to go to my GP!!! What is somebody supposed to do?

Perhaps today I will get some answers, or perhaps the groundhog will return…sorry for the rant, getting bored of all this now.

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Hi, groundhog day, couldn’t have put it better myself.

I feel for you, endless rounds of appointments and tests and still no further forward. I have been going through this for about 18 months now and still feel that the medics are just fobbing me off as some sort of attention seeking hypochodriach.

It is boring I agree. I’d love not have to deal with this day in day out anymore, can’t remember what the “normal” me was like anymore.

But I guess we have no choice but to keep plodding on looking for answers. I have at last found a GP who completely understands and is furious I haven’t had more help so is pushing for a neuro he knows whos speciality is MS to see me and carry out another MRI and a lumbar puncture.

Hang in there, i’m sure the answer will come eventually.

I’m interested in what you said about GP telling you to contact MS nurse. I thought you could only see/speak to MS nurses if you are a definite MS dx, don’t know why I assumed this. I might see if I can speak to one and see what suppport they can off.

Keep going Anon, you’ll get there in the end, seen so many stories on here where people just like us are in Limbo for a very long time and suddnely hey presto, there it is, a dx of some sort.

Take care xxx

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Hi Bunny- re the MS nurse i am in australia and ours has been essential at least to my sanity (it’s my husband who may have MS) she is always avalible to answer my many questions, debrief about my frustrations and try to get earlier appointments with the neuro when the next one is months away. she even suggested a private MS specilist neurology clinic we could go to. just try and see how you go