grasping at straws?

hello all,

I am not officially diagnosed but this month they said it’s mS, looks like PPMS, we’ll tell you in April 13 after one year of seeing you. I’d really rather they didn’t. So, reading up on anything I can google i read about hughes syndrome, sticky blood rather than MS. Not that it looks a picnic at all but- it has treatment. I started taking 2 x junior aspirin morning and evening a week ago. Alreasdy I am having hardly any numbness, massively less spascity- and I really haven’t felt my legs for a year or so. Aslo brain seems to be less foggy'. Husband noticing my feet and hands are vaguely human’, to me they feel warm- a really welcome feeling! But still they fouind spots on brain, ` multiple spinal inflammations’ and oligoclonal banding. My MS nurse basically said it was mS conclusively too.

As Hughes is often ` sorted’ by aspirin and mistaken for MS do you think I am just reading too much into these improvements? Am going to ask my GP if she will test for this while I wait for the neuro. Placebo effect? Any thoughhts welcome.

Sian

Could be a placebo effect. Could be for real. Could be that the aspirin is treating a different issue. Could be that you’re going into remission and it’s not actually PPMS.

Whatever it is, you should definitely be tested for Hughes - anyone with suspected MS should.

I hope it is! Definitely a better outcome than MS.

Karen x