Hi there everyone
Thanks for taking the time to read this - it’s my first time on here so please be gentle with me.
To cut a long story short I have had symptoms for a couple of years now but never associated them with MS or contemplated they could be MS.
Then after lots of bladder/ prostate & urinary problems at the start of 2020 I was sent for an MRI on my brain to check for a pituitary tumour.
Thankfully no tumour was found but they did find lesions at the top of my spine/ bottom of my neck.
This led to a second MRI of my spine and brain which from what I gather showed no other lesions than the ones seen on the first scan.
That was back in November and I have been waiting to get my appointment with the neurologist since then.
My symptoms have worsened over the last six months which has led me to chase this up with my GP and as a result I have today received an appointment but the appointment is a telephone appointment.
There’s two questions I have which I wondered if anyone could possibly answer for me:-
- As the appointment is only a phone appointment does this mean they have already looked and deemed it that I do not have MS so will just do a telephone appointment and tell me this? Or is it just a phone appointment because of everything that is going on with Covid?
I obviously absolutely do not want to be told I have MS but I also do not want to just be told I don’t have MS without properly been examined and been able to discuss my symptoms with the neurologist.
All I want is a diagnosis for what is wrong with me.
If it helps in answering I am based in West Yorkshire.
- Is it possible to have MS with only demyelination/ lesions at the top of my spine/ base of my neck and not further down my spine or on my brain? (I’m not 100% certain this is the case as I was just told by my GP who didn’t really seem too sure what the second MRI was saying with any certainty)
Hope that all makes sense and I know with question 2 you cant give any diagnosis’s and I am not asking for one I just wondered if anyone could advise based on experience
Thanks so much in advance