Many of you will have read my story - finding it hard to tolerate my husband’s behaviour, violence etc. He was doubly incontinent, unable to move his legs or right arm, and was fast losing the ability to chew and swallow.
Sadly on Wednesday he developed a tickly cough - which swiftly turned to pneumonia, and tragically he died in the early hours of Friday morning. He was 43, and leaves me and the little people (aged 8 and 5). Such a long time suffering (7 years since diagnosis), and then the end seemed very quick - although I am pleased his suffering and constant pain is over, I feel like it’s going to take me an age to grieve for the man I really lost 5 years ago.
Ms must be the cruelest disease known - no real prognosis (“everyone’s different”), constant pain and daily fluctuations in health (which made it virtually impossible for us ever to plan anything)…
…so I leave you for the moment, to take care of my “babies”… I’ll pop in some time down the road to see if my experience can help anyone else.
Thank you everyone for advise given to me - it was desperately needed and gratefully received