Hi everyone, not been on for a while but really need to ‘off load’. My life seems to be taking a real nose dive at the moment and I feel really miserable. I had a relapse around Xmas which was rubbish but I don’t seem to have picked up since then, one or two days feeling like things are improving but then go downhill again. The last couple of days the pain in my left leg and foot is agony, feel dizzy most of the time and very low, could cry at anything. Can’t get out of the house due to my leg and dizzy feeling. Anyway went to see my MS nurse last week to ask if I could have steriods, she said that without a current MRI they are unable to give steriods, she then called in the consultant who reviewed my file and ordered a full MRI and evoked eye test and an enormous amount of blood work as he thinks I may also have Hughes syndrome (thick blood), so now have to wait for all these test to be done. On top of all this I now have to attend an assessment for Incapacity benefit after filling in the rubbish form. And I am also extremelly worried about my daughter who has just found out that her 4th pregnancy has failed at 7 weeks due to Hughes syndrome so she is now waiting to see if she will miscarry naturally or if she has to have her 2nd D&C. Sorry to moan but life is s*** and I feel like I can’t cope with all this at the same time.
Thanks for listening