Hi I haven’t been on here for a while, but I thought i would ask your opinion.
I was on the Gilenya ( fingolimod) trial since 2007 until it was given to me when it was licensed. I have been made fully aware of the side effects such as basel cell carcinoma (skin cancer) but thought it was worth the risk.
But unfortunately I have developed one of these on my leg, which I am having removed, but I have been asked to consider changing my meds to Tecfidera, which I have been given all the blurb. I have been so well on Gilenya that I am loathed to change, one because of the side effects and also if it didn’t agree with me then I would not be able to go back to Gilenya.
One bit of me thinks I will stay on Gilenya as I have been fine on it but another thinks I should change.
The thing is I have always been a sun worshiper and even used sun beds, so this could have happened any time.
I am tempted to stay on Gilenya for now if anything else happens change then, I think it’s the mention of the flushing I am of a certain age that my hot flushes are not as bad as they used to be, so I don’t like the sound of that also I already take omeprazol for bad stomach problems.
I would appreciate your thoughts