Hope you all had a good Christmas and have a great New Year.
For those of you with mobility issues how do you get about? I went to meet a friend in London today but could go no further than than the station so we had lunch there. At the moment I use braces and a stick but I’m getting so very slow and the effort it takes to walk with these heavy legs is incredible. I really want to visit galleries such as the National Portrait, Saatchi, etc but am not sure I can get there and when I do how will I get round?
I posted last last week about my flipping dipping knees which buckle when I stand still so even standing doesn’t give much rest now. I saw a neuro who thinks this is a relapse and will pass- she prescribed Methylprednisolone - hopefully she is right but the last time I took steroids it made no difference. She wants me to keep moving and be as mobile as possible which I do try to be but it’s getting so hard. I’m seeing my physio next week so hopefully she can advise too. Some of you mentioned using a chair. If it gave me my life back I wouldn’t hesitate but I got the impression from the neuro that this wasn’t a good idea- we didn’t actually talk about chairs but I just felt this was her view, I’m probably being unfair and it’s probably me feeling it’s not a good idea.
I hate this disease!