Hi everyone ,
I haven’t been on here for a long long time so I apologise to everyone who has sent me PM’s, I wasn’t ignoring you, just hiding from the world!
Anywho, I have had MS for over 10 years and I have a lot of problems (pain, numbness, balance, bladder and the list goes on!!). I am mobile but I suffer terribly with fatigue from the minute I wake up till when I go to bed and do not sleep even though I feel sick I am so fatigued. I have tried Modifinol and it just made my brain very alert and buzzed but didnt give me any physical energy. It did however really thin my hair to the paint that everyone was asking what had happened because I usually have really thick hair and now its like a little rats tail hahaha. Amantadine worked when I first took it but no longer does anything and my Neuro has said there is nothing else i can try and to just get on with it as it is part of MS.
I was looking at the fatigue section on this Website and I saw Prokarin on the list of treatments for fatigue. I had heard about it a long time ago but didn’t look into it then but I started to look into it and have read a lot of research papers and corresponded with the lady who has MS and patented it along with other people who have used it. I really want to try the patches as I am only 36 and I am struggling so badly with basic daily activities and I have found a chemist in America who can ship it to me (they don’t provide it in this country) but my GP will not give me a prescription for it. I am not due to see my Neuro for ages and they would not get back to me if I phoned about something like this as they dont really respond when I have had a relapse, well sometimes they will phone a month later if i am lucky!
So, I have a few questions!!! and I would really appreciate any help you could give me as I am currently hauled up in bed (no sleep again last night) on a lovely day with my dog staring at me waiting for her walk but I am really struggling just to get around my flat The poor thing is very patient but I keep getting a little paw tap and a big sigh or the death stare when she gets really frustrated hahaha and I would love a little light at the end of the tunnel for my fatigue!!
Has anyone tried Prokarin and if so, did you get good results in terms of fatigue
If so, how did you obtain a prescription
even if you have not tried it, have you ever got a private prescription for something and how did you go about it?
Thanks in advance for any help or advice. I going to put my pooch on the treadmill for a while to work of some energy until im ready to walk her so don’t call the RSPCA about my doggies neglect hehehe
Lyndsey x x x x x