get results of mri at follow up appointment this afternoon,very tearful and scared, scared they will find something scared they won’t. Need to get a grip!!!
Good luck - try not to worry. Difficult I know. Let us know how you get on. Teresa xx
Good luck remember your list and if poss take someone with you.
Remember we are here no matter what the outcome is.
Pip
A piece of advice I was given following a somewhat fraught meeting with my neuro Remember, no one knows, understands or experiences your symptoms like you do. Be clear and concise about your symptoms, your fears and your expectations. Good luck and I hope that whatever the outcome, you will learn to adjust and cope. Catherine xx
Good luck xx Being scared is justified, this is a very daunting time, something we all understand. Sam xx
It may not be MS if it is it is likely to be a rare form, more likely to be a rare genetic degererative may be metabolic disease. Am going to be admitted for further investigation probably with multi discipline team, ms expert, genetacist amongst others, my sister came with me, neurologist checked her legs and she may have a mild form and suggested, she got her GP to refer her to him, for further investigation. Its even possible that my mum didn’t have MS. I asked what would happen again like MS there would be no cure, but symptoms could be treated and progression may be slowed. Not sure what to think, something to get my head round i guess. At least they will get to the bottom of it.
Hey there, Sounds as if they are going all out to sort out what is wrong with you. Hope they are successful soon and can give you some effective treatment. Teresa xx
Sounds like you are in good hands - this type of thing I’d missed all too often 
I hope everything goes ok in hospital and that you get some answers (and help) soon. Karen x
Grr! - autocorrect! is not I’d!!
Emotional melt down and can’t sleep can;t stop crying, they rang today have date to go in for further tests.
I am so scared, and feel so alone, thought i’d got my head round it till now. Had put the defenses up, everythings fine, no problem, will face what ever comes. If I’m like this now what will I be like when I go in.
And to be honest I am on my own, and I can’t trust people
Goodness, poor you. You will be in good hands though - this sounds like the NHS being at its best to find out what is wrong which so many don’t get. It is scary not knowing what’s wrong, I’m in that position too and like you put my defences up. But at the same time I know I’m ill. I’d love to be given a multidisciplinary approach so, although scary as hell, make the most of it to get to the bottom of whatever is wrong with you.
You will certainly feel better once you know, I’m sure, because then you can face the reality rather than guesswork - on here everyone seems to say limboland is the worst place to be.
When are you going in? Will be thinking of you all the way. In cyberspace you’re not alone!!
Debx
Massive (((((HUGS))))). You aren’t completely alone you know - we are always here for you. What you are going through is absolutely normal; necessary even - bottling up fears isn’t healthy - letting it out allows us to move on and get on with dealing with everything. And you will you know - you will deal with whatever comes your way, because that’s what we do. People may surprise you too. Why not give them a chance? Some will let you down, but I bet at least one will prove to be a real friend. Until then, you have us 
Karen x
Hi hon, very hard for you but I bet you’ll be surprised by how much courage you really have and how well you will cope with it all. Let the emotions come out now… as you are doing… and then you will find your strength coming through (although I know how hard it is to believe that right now).
And Karen is so right… have a go at giving people a chance… you never know until you try.
(((((((((((((HUGS)))))))))))))
We’re all here for you,
Pat x
Sweetie, as long as you are part of this community, you are never alone. I only have a Dad (miles away) and a hubby but I have never felt as cared for and supported as I have since joining this forum. Being scared and worried are a normal human reaction to all this but you will find an inner strength to deal with it. And there is professional help and support out there to shore up any gaps.