I have not posted for a good while but I see some of the old regulars are still here
My husbands PPMS is now very advanced with almost total immobility and all the other physical symptoms, eyes, skin infections, oral thrush, poor teeth due to the high level of meds, pain and sometimes confusion.
However we have a massive care package and I get a weeks respite 4 times a year.
Its with a heavy heart that a Nursing Home must now be considered. Regularly Gerry has acomplete personality change and treats me so badly. I believe that if he was not totally confined to bed/wheelchair I would be in fear of physical violence. Hes ruined Xmas and upset me and my 24 year old who cannot bear to see his mother driven into the ground by this awful illness.
The day before Xmas Eve he tried to get out of bed in rage. I immediatly phoned SS who organised emergency Respite from the next day- but I couldnt ask him to go that close to Xmas.
In the New Year we are seeing his Palliative Care Nuse to sort out a Nursing Home. She has been so supportive. I just feel so guilty and I know that this is not Gerry but the illness.
How did my wonderful husband turn out like this?
Love to all