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George are you still around?

It is more than five years now since I was diagnosed so must be around five years since you predicted that stem cell treatment was about five years away. I had a different user name back then (couldn’t access this new site with the old one) I didn’t share your optimism then, so I haven’t been disappointed! I am 55 years old now and am guessing that anything that might in future years become available probably won’t be available to us older msers, especially if it is going to cost more than a couple of aspirin! I hope I have not offended you, or anyone else, that was certainly not my intention. I had thought when I was diagnosed that even if there was no cure there would be help and support available, and had even believed there were treatments to slow down the inevitable. Couldn’t have been more wrong!! My (much much) better half is my only support, friend and rock and he has a pretty raw deal but has taken on the burden of my ms with good humour and without complaint and I am so grateful for that every single day. :slight_smile:

Yup still here and believe it or not still got MS; bugger you would think after 38 years I would be used to it? I can also remember my optimism saying 5 years but I think is was all tied up with people rushing to quasi clinics like Acts in Amsterdam; spending a lot of money to get; what turned out to be pig stem cells. This had to stop and the only way to do that was to give readers hope a cures not far away; they need not spend their hard earned money or re-mortgage their house on some spurious clinic. What is the use in being pessimistic; alright I was wrong but if we hadn’t that warmonger in the White House not allowing stem cell research things might have been different. An answer will soon be found George

Flowerpot wrote:

It is more than five years now since I was diagnosed so must be around five years since you predicted that stem cell treatment was about five years away. I had a different user name back then (couldn’t access this new site with the old one) I didn’t share your optimism then, so I haven’t been disappointed! I am 55 years old now and am guessing that anything that might in future years become available probably won’t be available to us older msers, especially if it is going to cost more than a couple of aspirin! I hope I have not offended you, or anyone else, that was certainly not my intention. I had thought when I was diagnosed that even if there was no cure there would be help and support available, and had even believed there were treatments to slow down the inevitable. Couldn’t have been more wrong!! Know how you feel, i was told nearly 20 years ago, that a ‘cure was just around the corner ’ turned out to be one hell of a corner though, there will never be a cure in my lifetime, i feel that the answer is in stem cells, but thats a long way off too,and as for support i have never had any, only from other people with MS,because what the medical people know about MS isnt really worth knowing, i have become my own expert in my own ms over the years,and only went back top see a neuro a few years ago, because i was told when i was diagnosed there was nothing they could do, so told to go away and just get on with it’ which i did, and when i finally went back after 17 years, i was told the same,theres nothing they can do,aprt from DMDS there been no change in all those years. My (much much) better half is my only support, friend and rock and he has a pretty raw deal but has taken on the burden of my ms with good humour and without complaint and I am so grateful for that every single day. :slight_smile:

Hi George, so pleased to see you are still around, you gave me so much useful advice, especially when I was first diagnosed and came on to the (original) web site, hopefully we will get used to this new one, the sooner the better Viv x

Good to see you are still here and still dispensing sound, common sense and positive advice. Thanks for it all!

Hello Flowerpot, one of the things I dislike most about this new set-up, is the fact that our profiles dont give our regular names and I like to address folk by that, rather their username. It also does not tell us what gender the person is. But I digress...I saw from your looking for George piost, that you say your other half is your only carer/support. That was me until June...when I finally talked my hubby into trying Direct Payments. Its worked out great for us…He now gets 8 hours a week for some much needed me time. Why dont you give it some thought, eh? Theres a lot of info on the net about it…just key in Direct Payments. Go on ,have a gander, eh? luv Pollx

Poll, I’ve never been a regular poster, but have been a regular reader since my diagnosis in January. I am sooo pleased you decided to join the new board - your chatty, friendly posts always make me smile :slight_smile: Isla x