Hi all,
I am not yet diagnosed (seeing a neurologist on Wednesday to see if I need to be referred to the MS Specialist) but I have been having symptoms for the last couple of years that have me thinking it might be MS-related. My mum was diagnosed a few years ago now with RRMS and my auntie (mum’s sister) also has lesions that are indicating she has MS as well. I also have a great uncle on my dad’s side who had PPMS before he passed away. I wasn’t sure if there was much of a genetic link that would make it more likely for me to get it? I already know I am a HLA-DRB1*1501 carrier and understand there is an increase in likelihood there, and my mum’s consultant wants her, my auntie and myself to get genetic testing done through the NHS which is being done in the near future.
A rough rundown of the symptoms I’ve had for the last couple of years: fatigue; dizziness; burning sensation in my left hand, buzzing and burning in the soles of my feet; acid reflux; GI issues; a pressure/tightness either on the left hand side of my chest or wrapped around my entire torso; tingling in my chest; pins and needles in both hands and many others. They all tend to last as short as 10 minutes to as long as a day but they aren’t every day apart from the fatigue which has been there from the beginning. I’ve been diagnosed with Postural Orthostatic Tachycardia Syndrome and ME/CFS but I am unsure if the CFS diagnosis is correct and if it is actually MS causing the symptoms.
Sorry if this is a bit all over the place, I have been talking to my boyfriend and mum about it on and off but I don’t want to keep bringing it up with them so thought I might try and speak to other people who have experience with the condition.