Gabapentin Dose for Hug

Everyday living
1

Hi everyone. Hope you are all doing as good as you can.

I am suffering badly with the dreaded Hug. It has been really painful over the past few days. I’ve been really busy so I reckon that is what has brought it on worse than usual. It has always been a tight feeling but over the past few days it has been very painful.

I am on low dose Gabapentin (800mg per day) which I know is very low.

Just wondered how high a dose others are on for MS pain.

Thanks so much for any help. I feel a bit at my wits end today, which is not like me at all.

Shazzie xx

2

hi shazzie

i was told to take the maximum dose but i can’t remember what that is.

hope the grip of death goes away soon

carole xx

3

Thank you so much Carole. I know you suffer too.

I met up with lots of old work friends last week but think it was a bit much but I really enjoyed it so it is worth the grip of death (good description).

Take care Carole.

Shazzie xx

4

Not even some Neuros know what the maximum is.
I am on 3 x 300mg, three times daily (2700mg) and have been told that this was the top limit.
I knew this was wrong (from an up-to-date copy of the BNF).

Since then, the senior neuro in that department has talked of an increase to 3 x 300mg, four times daily.
That would match the BNF figures.
But, I do not know why I need an increase - provided I space the doses out, I have no problems.
I do have some pain, but it could be Arthritis, so I put up with it.

Geoff

5

Maximum dose is 3600 mg daily as told by my gp and two neurologists.

I’m still an ms newbie so forgive my ignorance. What is the hug? I have noticed sometimes after taking the dose that my heart starts to race, having read your comments I realise that it could be characterised as tightness, is this the hug? I am on 500 mg three times a day.

6

Thanks for your replies.

The hug is a tight band round my ribcage and lately it is accompanied with pain too. Like a cramp pain.

Hope yours improves soon.

xx

7

Thanks Jen. And thanks for the gentle hug.

Shazzie xx

8

Had the hug once it hurt a lot this was before I was diagnosed, lying down flat for 5-10 mins really helped ease it, can be very painful, I was on gabapentin 1500-2000mg a day didn’t help now been put on Pregabalin will see how this does for me.